Category Archives: Note to Self

What Blooms Again

“When the eternal and the temporal meet the result is what has been known in all traditional cultures as the cycle of time. The timeless and the temporal meet in the reality of rhythm and recurrence…” — Jacob Needleman

Almost exactly three years ago, Viral and I went for a walk in San Mateo, and were hijacked by scent. His counts had just begun their sobering plummet waking us out of a six year lull of sweet stability. But he was still so strong, so full of light. Our lives were circumscribed, but vibrant. It was hard not to feel invincible. Fear flicked its tail in the pit of my stomach but for the most part I tried to ignore it. We had come so far. This was just another corner to be turned. 

It was at a quiet corner that we were captured. Lassoed by a perfume so unearthly and potent, Viral did not believe at first that it was natural. Across the street from us a magnolia tree, lit with creamy, bird-like blossoms, set amongst leaves of emerald and green. We walked towards it, as if in a dream. As we got closer the haunting, heady fragrance grew stronger. And I forgot that any part of me was frightened about any part of the future. 

The following January, we returned in a bid to catch the blossoms again, but we didn’t time it quite right and missed the window. Viral’s counts continued to drop. Despite the increasing dependency on transfusions we still hoped for a turn in the tide. By the time the next January rolled around, I was at the start of cancer treatments, and Viral was looking at the inevitability of needing a bone marrow transplant. The bloom time of a particular magnolia tree was no longer on my radar. But life is cyclical (one of its many saving graces). Rhythms reassert themselves. That which bloomed yesterday, will one day bloom again. 

Today, we found the tree frothing with flowers. Their scent found us first. Reeled us in as readily as their ancestors had so many moons ago. As I breathed in that perfume that washes the spirit, mixing moonlight with pearls and pale green apples, I thought of the wheel that turns and turns. Ushering fortune into disaster, and disaster into grace, tears into laughter, gratitude into grief, loss into love. The ceaseless turning that blurs distinctions, punctures conclusions, and is hard of hearing. Deaf to all petitions. I have fallen so far and been lifted so high through this turning. I have been lost and found, broken and healed, chastened and dignified, devastated and steeled by it more times than bear telling. And the koan of it is that while cycles repeat they do not equal stagnation. They do not dabble in replication a la photocopies and clones and cookie cutters. Cycles, though they may seem like it, are never merely just more of the same. Though they wear the cloak of familiarity, they are freighted with mystery. They represent all that inexorably retreats from us, all that falls off the edge of this earth, plunging into silence, vanishing from sight…and all that is renewed and returned to us. A resurrection riddled with light born of the dark. Our eyes see the old, our depths sense the new. Perhaps evolution then, is just repetition— with a hidden and princely twist in the tale, the price of which is pain, and an inch by inch transmutation. 

Jan 22 2020

The prayer to wake with is a plea for a heart carved vaster, one that can hold immensities without overwhelm, a space that can channel the beyond without becoming bedazzled or needing to stop to exclaim over the view. I am, I sense, too easily taken. Distracted by splendor, my delight needs more rootedness. It is, in the grand scheme, not a bad problem to have. My heart knows what to do, it just needs to be consulted more often. When my attention flocks to it there is a twilight sensation of settling down, whatever it is that slows allows for an inner quiet to assert itself. The swirl finds stillness and the flow can proceed unchecked by the giddy ego. To be an instrument requires that one not be anything else. Personality has less place if any at all. And I am bursting with personality, loathe sometimes to leave it even when I see it is not serving. How fond I am of the jagged edges of my being that I’ve cut my fingers on, and caused harm with. I resist softening but can no longer defend my resistance. What a well-mannered battle wages below the surface. Sometimes I am unsure which side I am rooting for. The morning makes everything possible. Even redemption. No one can manufacture such newness. It is bestowed like a blessing from realms we sense but cannot see. The sun— that familiar stranger— the force we at once know and do not recognize. How to surrender my life to your fiery gaze? What would burn in me and what would remain? I start so many sentences with I. Is that a problem? How does a river persuade the Earth to move aside, how does it part the ground? I need that knowledge now. For there is a river waiting to pound its way through me to the ocean. On a morning like this a part of me thinks there is nothing to do. The river finds its way. The Earth collaborates. Their partnership does not demand my participation. If I can be a perfect witness perhaps that is enough.

If.

September 24th, 2020

Everything feels imbued with a sense of the sacred. I am being drawn into the center of the Earth here where I am planted lies the medicine I have been searching for. Each day brings me closer to where I already am. The trees have been so patient with me. Source is speaking through the many megaphones of manifestation. I feel an urgency that is paradoxically stilling. An impatience with old ways. My blindness and confusion, or perhaps more simply— my lack of ripeness led me to linger too long at wells that had run dry. I cannot be contained. There is something in me that bristles at any hint of a bridle— only because I have not fully understood the scope of my unassailable freedom. I should be able to take things more lightly. Should be able to extend a safe and loving presence to those who do not know or understand me. Instead at times I find myself turning steely inside- hostile towards that which is not intending to attack me— that which is simply freighted by a bundle of gifts and fallibilities that lock in friction producing ways with my own collection of strengths and vulnerabilities. If I were more curious I would be less reactive. I am learning that the road to learning will be the road to my salvation. If I am busy learning there is no time to build the ego’s defenses. I want to lose myself in intrigue. To marvel at the hidden machinery and its reliability….the way I marvel sometimes at water that gushes out from the taps, the way I marvel at airplane flight, and the wonders of the Internet. There is a hidden logic to these things that human minds have uncovered and deployed. I, who do not have the same grasp of the underlying principles, I who had nothing to do with paving the path for these possibilities— still have the opportunity to interact with, and enjoy them— unquestioned. It is a curious privilege…and a double edged sword. It is so easy to abuse privileges that we don’t understand. The intrinsic machinery of our minds is not our ultimate frontier. But unless we encounter it for what it is, and own its mechanical aspects, we cannot legitimately transcend it.

Dec 15th 2020

Margazhli is born anew. The month of Krishna. Dark skinned days. A paucity of light, rich with possibility. Gravity is a friend. Give to the earth and you shall receive. Everything is pregnant with the Divine. I have been waiting outside the door of my life hoping for a summons. Not realizing that I have never, not even for a fraction of a second, been left unsung to. When you are surrounded, without let up, by invitations, you mistake a colossal presence for an unfortunate absence. This is the comic tragedy of the human journey. We sit in the lap of the Goddess and yearn for the touch of Grace. To know hot we must know cold. To know in, must cognize out. But God cannot be learned or encountered through polarity’s portals. This truth on this diamond-sharp morning is enough to draw laughter, and tears.

May 16th, 2022

It is interesting to be alive. When I am bored I am not living. So much floods each moment. My feet are always wet, my hands always able to gather something more. Something different. Something true. Sitting here now, what is it? The silence of the morning is threaded with sound, if I concentrate I can hear underneath the clicketyclack of Viral’s keyboard, and the morning cars and the refrigerator’s hum, a steady quiet tone— so softly pitched as to be inconspicuous, and yet when I bring my attention properly to it, it grows slowly then suddenly louder. I can with focus bring it to the foreground, observe how the other sounds then dim and fade. What captures me is not always circumstantial but a matter of choice and disciplined response. What a trickster time this is. Am I toying or being toyed with? What is being asked of me? What do I want to do or be? The matter is not known. I feel not lost, not found. I want– but not clearly. I wish but not pointedly. I am trying without trying to find Grace. The lessons that were clear are now garbled. Indistinct. But I still love the road and my travel companion. My dearest love. I am waiting for his health to show itself restored in numbers. The redness of red poppies, so striking with their black centers, the geometry of their design, the delicacy of their petals, folded like tissue paper, crinkled, flimsy yet capable of vanquishing my heart. I stare and stare at the graceful swan-necked droop of their buds, the delicate fuzz of their stems, their slender height, their arresting presence, their dances with the cornflowers.

April 4th, 2023

How do I feel? A little shaky. Like custard. More solid than liquid but not by much. Wobbly like a stool with uneven legs. The uncertainty of it all. In some ways I’ve grown used to it. In other ways. I feel like I’m holding my breath. I’m trying to live each day. Without taking things for granted, but without quiet desperation either. I do not want to milk the moments. I just want to be here for them. V is so many different kinds of valiant. As I passed him this morning, as he sat in his easy chair in the living room, he held out his palm for me to take. Such beautiful​, strong, ​open hands he has. How was it given to me- the privilege to hold them? I am so aware of how golden he is. How I’ve already received a bounty. A thousand jackpots– no 100 times a million zillion thousand jackpots. He has no meanness in him. Has never looked at me with dis​gust. Always such a steady, warm full-hearted all embracing love. I drown in it daily and live to tell the tale of such ​wonder at. How am I? In love. And it is stronger than my fear. But last night I lay awake in the dark for a long while. And though I did not cry, There were tears nearby. 

April 5th, 2023 ​

What do I want? I want to be held in totality not curated. I want to be connoisseured. I want everyone I love to be ​happy, healthy, whole, heal​ed, blessed, ​free. I want to be fully me. I do not want other people’s ideas of success and virtue, worthiness and belonging to usurp ​my native inborn understanding of my life and all life. I want to be open to receive and learn from other people without being hijacked. I do not want responsibilities to be assumed of me. I want to be able to ride bareback on the wind like a dandelion seed. But w​ith slightly more say in the matter, as to where I land. I want to give without keeping accounts. I want to assume the best in people without being Poll​yanna about it. I want to be able to be bad tempered, fitful, wavering and full of contradict​ions without fear of what other people will think of me. I want to be able to keep holding ​out my hand​ (this is hard for me) ​when others withdraw theirs. I want to know in every cell of my body, what my heart knows through and through- that Viral’s love is my superpower, a cloak I wear and never am without. It isn’t so much a shield as a shock absorber​, a lightning rod that grounds everything I perceive ​as harmful, hurtful, unhelpful. But I must remember I am wearing it. There’s the catch. I often forget. I’m taken by old habits of identity​, of needing to be seen for who I am.

When you are seen by the sun. Does it matter if the street lamp doesn’t shine on you? No, it doesn’t. And if it does you are-I am- forgetful of my place in the universe. I am the center of the sun’s world. This is the cosmology of ​The ​Beloved. In my deepest core I know I need nothing, want ​for nothing, I am the queen whose ​palace is furnished by love. I only want to know it again and again and again​. To see how eternity squanders itself on me, f​illing my bowl with gold coins, showering me with rose petals, bringing garlands of ​jasmine and ​trays laden with melt in your mouth​ delicacies. ​Filling the moonlit nights with rare music​, filling ​the blueness of the sky with promises that keep themselves. I have never, not once, been betrayed. And yet I often play the part of one who has been wronged. What do I want in my deepest core​? ​This life. This life.This life. It brought me you. On wings of silver and with the tenderness of ​twilight.

Dec 31st, 2023

What can there possibly be to say about a year that has showered so much beauty and brutality upon the world? In this small corner I have been more unwell than I can ever remember, at a time when Viral’s health is more compromised than it has ever been. And then I discover I have cancer. Darkness falls quickly and these short December days are rain dazzled, and filled with uncertainty. Spring seems distant. I have not been able to dance for almost two months. And then on New Year’s eve it finds me again. And I dance and am danced by light and shadow, fear and love, the ineffable and the impermanent hold hands in this time. Edges blur. Reflections shimmer and fade. What could possibly be more beautiful than this life I am living? I am an amateur dancer. Amateur. From the Latin Amatoreum, which means lover or friend. I am not a skilled dancer, but a lover of dance. And an aspiring friend of all that dances. Which is all that is.

Jan 1st, 2024 

It is here. This new year. What are you bringing for me that I am unaware of at this moment watching you approach with eyes that cannot conceal their fear. What must I remember as I walk through the square boxes of your days? What must I hold fast to and what must I release? Are you going to whirl me through the far reaches of the darkest depths of my mind? Are you going to reveal to me the diamond point of light that lives at the heart of all things? I must face my demons and ask them their names. I must take them into myself and find a better way forward. I have made so many mistakes and now am being asked – not to pay for them, but to learn from them. There is a difference, though within the sting of experience it can sometimes feel like the same thing. I am going to be hurt and helped and hurt and helped and hurt and helped and there will be more help than hurt there, there will be more kindness than brutality. There will be more hope than despair. There will be more good to come even though it feels like the best is over, that the golden era has ended , that the bright light that you carried has been snuffed out and there is no lighting the lamp again. But the light that you carry cannot be dimmed. It is only your eyes that are closed. Only your heart that has forgotten. Turn around and you will find yourself. Open your eyes and your heart and your little mind and you will know what has never been forgotten . You have been watching yourself from the very beginning. You have been watching and waiting and waiting for this. Now live it. And try if you can, to eventually love it. 

Jan 5th, 2024

“Are you brave or chicken?” the acupuncturist asked. “Chicken,” I said, without hesitation. But the bigger truth is, I am both. And I will not come back to this person or his flawed questions again. 

Feb 15th, 2024 

It is the day after Valentine’s Day and my heart is breaking. The old life is outside my window but I can no longer open the sliding doors and slip into it with laughter on my lips and a song in my heart. I am ravaged and pillaged and plundered and torn. I am burnt orchard, poisoned well and my thoughts reek of desperation. Everything I thought I was has vanished, and what is left is abject helplessness. a sense of being kicked to the curb, turned out of the mansion, stripped of all benefits, turned out and left for dead by one whom I believed cherished and favored me. It has been shocking but also not surprising to discover how little substance there is beneath my style. How immediately I go to pieces without attempting to be strong. I feel spineless and gutted. I do not have any faith to lean on. In its place is a void so large it swallows me everytime. There never was anyone looking out for me was there? All just happy accidents until the tragic ones. Is this punishment? Whatever it is, it hurts. So much love around me. It surrounds my miserable island life like an ocean and I feel untouched by all of it. Unable to receive or rejoice in it. I do not want this wretched existence. I cannot fathom the loss of my old life. The one where everything was lilted and lovely, and even my fears were blessed. I made the mistake of feeling protected. Now I am utterly exposed with nowhere to hide. I grow piteous and weak. I have no pride, no shame, nothing to hold my grief in check. I would howl like a dog if I had the energy. 

March 2nd, 2024 

And who are you meeting here in this dreary time? No outside visitors allowed. The company you keep is bleak. Bleaker still, the future as you see it, through hopeless eyes. How funny you are, waiting still, like a child, to be picked up and held. Even in this desolation you suspect there is someone looking out for you. You depend on this. It makes you behave weakly. If you were truly undefended or thought you were, perhaps you would put up more of a fight. I have very little regard for myself in this time. I thought I had come to the point of truly liking myself, of seeing my gifts and flaws with quiet, love-warmed eyes. But who was that self I saw? Where is she now? Gone. Dead. Or did she ever really live? How badly I am writing out my state. What is it that I would like to say? I would like to say that existence and its different dimensions and exigencies disturb me now, where they used to delight. The things I gave my heart to (save Viral) feel grotesque. Insidious. Beauty, a sticky trap. The world, a carnivorous flower and all of us insects, just a moment or two away from being devoured. How hard it is to look back and see myself as I was. Richly happy, playful, thrilled to be alive, to be me. What can I learn from this looking? I don’t know yet. And perhaps I don’t want to know. Even in my moments of abject weakness I can feel something in me that is neither up nor down, neither fearful nor trusting, neither rageful nor calm. I must hold out my hand to that placeless place. And in its disinterested utter engagement, find my peace. 

March 19th, 2024 

Glistening with sadness and a particular pain of what once was and is no more. Every backward glance brings back an awareness of breathtaking beauty and shattering loss. Old photographs make me feel like lamb to the slaughter. I look at the light in my eyes and think- “Oh- she does not know. She does not know what’s coming.” The hardest thing has been coming face to face with my lack of reason to be. I am empty, not just of purpose (which I’d come to view as somewhat suspect even before this) but of the capacity for peaceful pleasure. Nothing speaks to me, let alone sings. And I had designed a life around listening to the hidden music all around. So what is left now? Deafening silence or worse- tinny tunes. Even the most magnificent melodies feel wretched to me now. What did I think life was? A guarantee? A perfect promise? A wish come true,? Did I not know that things can and do go horribly wrong? Of course I did. I just never imagined it possible that I would be tormented, evicted, punished and dismembered in this way. Even as I write this, I am aware of the privilege in my condition. How protected I am in so many ways. Even in the midst of this grinding pain. I must learn to be more grateful, but it has not been easy. My heart turns more easily to the sources of bitterness than to the flow of blessing. I do not have it in me just yet to check this wayward impulse. Where have I gone? In whose arms am I being held while I wait here vacantly? What is this time for? Does it profit anyone- and do I care what good comes of it if I do not come back to health? Will I ever feel myself again? I cannot even begin to write my fears for what’s ahead with my beloved. He is stronger than I can ever dream of being. How true and tender he is. How long his patience, how kind his gaze, how loving his regard of me. Always finding a way to absolve me of my deepest sins. How god- like and human he is. And I think more people are beginning to see it. I’m glad for this. This is a good thing. I do not feel I did enough in a well body to shine light on his light. In my descent into darkness then, let his deep luster be known. He deserves the admiration he has never chased. A finer heart and mind and soul there is not. He is on a work call as I write this. His voice sunlit. How much he holds. With such grace.

November 24th, 2024 

The lit Christmas tree enchants the night. The little girl whose heart ached, yearned and rejoiced at the beauty and mysteriousness of Christmas time in Michigan, blinks open her eyes within my heart and is dumbstruck with delight. Darkness and light. Deathly cold temperatures, a world blanketed in soundless white snow, its austereness. It’s foreboding austerness, softened by the twinkle and promise of Christmas lights. The contrast quickens the heart, allows it to receive with keenness, the miracle of love, of hope, of forgiveness and gratitude, of kinship and closeness with all that is. I am awake to the splendor of this season and my suffering. Viral and I are still whirling in our worlds of pain. The shock and newness of our amputations– physical and metaphorical, continue to stun, sober, and stab us. We stand up on wobbly feet, holding on to each other and are invariably slammed to the ground. Again. My rage and my tenderness take turns. Fear birthing anger, love, yielding gentleness. The latter is slowly winning out. But I am also bewildered and opinionated. I am full of contradictions. Never have I been so weak. Never have I been so strong. 

November 25th, 2024 

A rainswept morning. I wandered outside with blue cornflower seeds to sprinkle on the damp Earth. Last year I missed the chance to broadcast beauty in this way. Fall and winter passed in a dizzying haze of illness, desperation and despair. I was so strong, so hopeful, so sure there was a way through, until I was not. And rasa drained out of the world as surely as if someone had wrung it dry. There was still beauty around me, but I was inert. I only have so many seasons left. I cannot afford to let another Autumn pass me by. How I love this time of year. It’s moodiness, it’s slick streets, the first greening of the ground. The quiet light. 

*

Who is this anxious one inside me? 

Who says things I blush to hear, 

Who does things I would be ashamed to do

How like a frightened animal she is— 

All claws and desperation, 

Hurting the one who is helping her, 

Helpless to rein herself in. 

And yet love holds her close, 

Lets its chest be rendered by her cuts, 

Lets itself be beaten by her words

Love’s eyes fill with tears of compassion, 

And still she cannot stop. 

“Don’t go,” she pleads. 

Love smiles sadly, strokes her hair. 

“Do you not know me?” 

He whispers softly, 

“I would never.”

Dec 28th, 2024

My love for the old life guards the jeweled castle of my inheritance. I know what it wants: My head on a silver platter, in exchange for my diamond crown.

New Year’s Day 2025

Slept in after a tossy/turny night. Woke up ten minutes past the time for an appointment. Dashed awake and went out to feed the birds. Found a mangled little one on the bridge deck. Sobering to see its beautiful outstretched wing, its partially decomposed and wounded body. Lifted it gently on an orchid leaf. Placed it underneath the weeping bottlebrush away from the home and hidden from view. I should have buried it but didn’t have the shoulder strength for that. And I didn’t want Viral anywhere near it.

January 22nd, 2025

Last night as Viral returns from the restroom I tell him that I’ve switched places, and moved to his side of the bed. “It’s all your side of the bed Maharani,” he says. Sometimes, (oh the sweetness of those sometimes!) he feels unchanged, the husband I’ve known and cherished since the beginning. These days when we are sleeping I feel the need to be held close, I tuck his arm around me, his warm hand resting on my shoulder. I feel like there is an infant self in me that needs to feel the confines of care. Everything else is so unbounded and unknown. Before we were married, in those short months between our first conversation about our connection, and our wedding— I would often have this image of my head on his chest, listening to his heartbeat. For well over the first decade of our marriage if you asked me where my deepest sense of home was I would have told you it was literally in Viral’s arms. No matter how anxious, turbulent or unmoored I felt, I always found in his embrace, a bone-deep relaxation, a breathing space, a peacefulness that pierced every cell. I can’t remember when exactly this shifted. But a few years after his diagnosis in 2015, I recall noticing that often as we were drifting to sleep, I could no longer crisply distinguish my body from his. And then not long after that I remember realizing that every time he put his arms around me before sleep, I would experience a distinct prickling sensation at the back of my eyes, and an energy in my throat. As soon as I became conscious this was happening, I recognized these sensations as the sensations that preface tears. And though I didn’t actually tear up, I was very quietly brought to that verge every time. This preceded the drop in his counts in the fall of 2021, and continued through the next couple of years when we tried one approach after another with no success, culminating finally in the transplant and and all the complications that followed. Somewhere in this period, I stopped feeling the deep sense of peacefulness and homecoming. I became attuned instead to the rapidness of Viral’s heartbeat. How hard his body was working, how much he was enduring. I could feel certain forces acting on him, I could feel his courage, his lack of complaint, his commitment to not resisting anything life brought to his doorstep. But I could no longer find within that embrace the instantaneous relaxation, the safety of a deep homecoming…until now. Now I feel it again, and yet…

It is different from before. I feel the warmth, the comfort, the deep recognition of his love, the power of it, and our connection. But I also feel my separateness, my own sovereignty. It is at once a loss, and gain. 


Of Memory, Time & Breath,

“The answer to the question of time, the soul’s answer to the question of time, is not anything in words or ideas. Time is incomprehensible to the mind that asks about it, our mind. The soul’s answer to the problem of time is the experience of timeless being. There is no other answer.

— Jacob Needleman, “Time and the Soul”

Flashback:

Day 51

We are sitting on the sofa in his hospital room together. I have a cup of coffee and am sipping slowly. “How is the coffee here?” he asks me. “Nowhere near as good as yours, but by hospital standards, it passes muster.” He smiles. “Are you up for some conversation?” “Would love it,” he says.

Pavi: Are you looking forward to us going home eventually, or is that not something that comes up for you?

Viral: I haven’t really had much time to think about it, but walking around with the limitations here you realize— it’s not the most expressed of lives, to be living within the box…. [he pauses] Is it going to be awkward for you to play a producer role in this?

[In the early stages of treatment for his brain infections, Viral sometimes operates under intriguing premises that are not fully rooted in this reality, but that are not fully disconnected from it either. One frequent assumption he makes, is that we are on a film set. He recognizes we are in a hospital, but assumes we are here as part of an elaborate, scripted production that is serving a greater purpose.

Looked at from his perspective, this is an entirely plausible explanation for the implausible circumstances he finds himself in. A reality where day and night have no boundaries, where norms of privacy are a thing of the past, where his body is routinely poked and prodded, confined to a strange bed, its movements restricted by a jungle of tubes and wires. High-pitched alarms and beeps punctuate the soundscape, but no one appears deeply perturbed. Assorted characters in varied uniforms bustle in and out of his room without waiting for permission, asking questions that range from the banal to the bizarre. This is all just at baseline. Life in the hospital, post-BMT treatment, even without any complications, follows a profoundly fragmented rhythm. Toss four severe infections, including two of the brain, and short term memory loss into the mix, and the disconnected nature of that reality is exacerbated many fold.

In this state, the brain can no longer seamlessly supply a continuous storyline in the ways that it is used to doing. It must draw its own conclusions from a smattering of disparate scenes. Two things stand out to me in this time. They put a lump in my throat, and they fill me with an awe so sharp, it lacerates my heart. First, the awareness that at this point, at a level pre-cognition, it’s not Viral’s conscious mind that is analyzing and choosing interpretations. The patterns he’s built up over a lifetime are choosing for him. And Viral being Viral, the conclusions he is drawing from the felt-sensations of his current reality– a reality that is physically intense, and rendered in a jumble of disparate snapshots — are not fearful or self-oriented. They are benevolent, interesting, and rooted in a fundamental sense of love and interconnection. In his mind, he is a willing actor in a meaningful project, not a victim of frightening circumstances. And he is not trying to direct the process, or even negotiate a cut to a more comfortable scene. And second: I have a pervasive sense that in Viral’s disorientation, he is, in a strange and powerful way, revealing the truth of memory being at least in part, a medium of agreed upon fiction, much more than it is the domain of objective fact. He is pointing with a kind of purity, to the storylines we live in, the scripts we unconsciously create and unconsciously follow, while assuming we are living free lives. He is surfacing the irony of how we make an intricate movie set of this marvelous world, and dub it Reality.]

Viral: Is it going to be awkward for you to play a producer role in this?

Pavi: What do you mean?

Viral: If we are doing this project, and I’m at the center of it, is it awkward for you to be the intermediary?

Pavi: [By “this project,” he is referring to the film he thinks we are in,] Any role that keeps me at your side – sign me up!

Viral: You’re so sweet. [I am many things and only sometimes sweet, but if I had to take a guess, I’d say this is his response to 95% of what I say to him :)]

Pavi: How are you feeling this morning?

Viral: Clearer and actually rooted in my body in a fundamental way. Grateful to have the rooting of our connection – yours and mine in particular. And grateful to hear about familiar deep relationships, still being a part of the overarching landscapes, the recognizability of those foundational forces within wherever the new narrative is. 

Pavi: What is the new narrative?

Viral: I don’t know yet. 

Pavi: Are you looking for one?

Viral: No I just get the sense that I’ve missed a bunch of time and perspectives, and so am just assuming that I’m going to see partial angles– which is of course true no matter what. 

Pavi: Do you have a sense of why you missed a bunch of time?

Viral: It’s a strictly biological or psychosomatic experience– it seems like I needed the space or needed to create the space to — I don’t know exactly what — to heal or ground in multiple perspectives or just adapt to a new reality that I don’t have all the full details of –it’s almost like I’ve missed some time and need to adapt to that. 

Pavi: You had a BMT at Stanford almost two months ago. Engraftment happened, but before that a few infections set in, and two of them were in the brain and caused inflammation. This caused some memory loss, particularly short term memory. You are being treated with very potent and very targeted medications that in the short term create a sense of offness because of the side effects, but there have been remarkable improvements in your state of well-being and particularly in your physical capacities and also your clarity. You’re doing really well, even though it may not feel like it to you since you are maybe comparing with your old normal. But they are expecting a very robust recovery of your whole system given enough time and so am I. Of course we can’t know for sure because nothing is quite for sure in this–

Viral: Domain

Pavi: Yes. But there are strong signals and indications of recovery from all dimensions and levels–

Viral: The adventure continues.

Pavi: Yes! Does it feel daunting in any way to you?

Viral: Daunting is probably not the word I would use, but I think there’s an initial sense of an interesting and major challenge — a sense of like — this is what life IS. Another emerging set of explorations. Whether you know it, or invited them or not… though I guess some deep part of you knows, and did invite them. 

***

Day 52

The last couple of days have been hard. After a night of very little sleep and a low grade fever, Viral has several other concerning symptoms show up. I am watching him like a hawk. In his current state, even minor symptoms can have serious implications and must be taken seriously. The day quickly fills with medical investigations. Another MRI of the brain, another x-ray and CT scan of the chest, and a bundle of other blood, stool and urine tests in addition to the usual regimen of almost hourly infusions and pills. How tired and uncomplaining he is. Through all of it. How heart-wrenched and full of doubt I am. Through all of it.

His body has been subject to so much. The infections he is battling are severe. The treatments are life-saving, but far from benign. The results are ravaging. It wounds me to look at him sometimes. I see the small red dots and dark bruises on his body (the result of low platelets). I study the frailness of his arms and legs, the fragility of his wrists. The thinness of his face (how I love that face!), its once mobile features now so much less fluid, his smile (that sunlit smile!) constricted by facial muscles that cannot move with the same ease they used to. I see the light drained out of his once vibrant, now darkened skin. He has lost almost thirty pounds. His ankles and feet are uncomfortably swollen, tight with retained fluid. His shoes no longer fit, nor his sandals. His chest caves in a little. When he moves, he moves hesitantly with the help of the walker, his eyes dropping to the floor. “Shoulders back,” I tell him, as we walk together, “Remember to breathe. Eyes straight ahead, remember to look scan the horizon.” I need these reminders too. It is difficult to take deep breaths. Difficult to keep my gaze focused on the path ahead. I am given to the backward glance. Riddled with memories of our life together. Too haunted by the ghosts of a cherished past. I did not want my life to change in the ways that it has. On the surface I try to keep moving.

There is so much pain inside, and I do not feel it is the time to attend to it. Inside me a feeling that feels like a knowing. A knowing that Viral must be my focus in this time. I need to be at his side. The pain ignored, erupts on its own schedule. In private moments late at night, in the early hours of dawn, and once, at a rare acupuncturist appointment. A howling, ragged, primal release of tears. A grief that feels like it does not have a beginning or an end. And yet, even in the midst of that brokenness, I receive occasional glimpses. Of a strength stirring in the deeps. A power and fearlessness that I am, funnily enough, more than a little afraid of.

Where are we headed Viral? And who are we becoming?

Day 58

Every time the doctors come in I have a list ready. I pepper them with questions regarding the persistent fevers and about possible additions to the regimen to protect/address the potential of the inflammation being ill-controlled or aggravated. I ask if they have a pool of other experts/specialists they can tap to find out specific details about cases where there was successful resolution of inflammation/recovery of cognitive function/short term memory. There is a meeting on Monday where they will have access to more specialists and they will surface his case there. I ask about access to therapies while he is still in the hospital, I ask how we can ensure that he gets timely intervention. Sometimes I am direct to the point of sharpness with my inquiries. I have learned to prioritize clarity over politeness, and I ask the nurses afterwards to let me know if my questions are ever irrelevant or unhelpful. Each time they say the same thing, “If it was my husband, I’d be doing exactly the same thing.”

Invariably, if he is awake during these ‘energized’ interactions with the doctors, Viral intervenes with a quiet sweetness that makes me tear up and wonder all over again what his spirit is made of. While I’m trying to get answers and ensure closer monitoring and follow-up, he (even in his condition!) wants to make sure no one is offended or feels misunderstood. He jumps in to soften my pointedness with his appreciation. “We know you are on our team and you work at the edges where there are often no clear solutions. It takes bravery to work in that place and we appreciate all that you are doing, and the dedication that you have to helping us and others.” On one occasion he interrupts my interrogation by trying to convince me that the doctor I’m talking to is a volunteer. At that point even I have to laugh. “He’s trying to soften my approach,” I say to the doctor. She smiles, “It’s beautiful, ” she says, “You both just care so deeply for each other.” “And we care for the ecosystem,” adds my extraordinary husband

Oh Viral!

***

Viral first did the pen and ink outline for this painting, then asked me to help. I gave him the paintbox and asked him to choose colors for different sections of the painting. I said I would paint it for him. He started out choosing yellow for the heart and then green and brown for the club shaped protrusion on the upper right, then orange and black for the eye-shaped figure above the heart. I finished all of these areas sequentially and then he asked for the brush and filled in the little “foot” with orange and also painted the bottom layer — greenish blue/gray before asking me to fill in the rest with variations of the same color. He then chose red for the little cluster in the upper left corner. The next morning over coffee I showed him the painting again and asked him to title it. The spontaneity and succinctness of his response arrests me. I immediately sense a deep current of wisdom beneath the words, but it will take me much longer to truly register their meaning.

Title: Beyond Time & Force

Time is a type of force. There’s a presence that goes beyond the conditioning of time and of force. It’s what’s rooted in yourself vs what is rooted in projections of yourself.” ‘

***

Flashforward

Back in our own home, as autumn makes its way back on stage, we navigate the dizzying labyrinth where memory (and its loss), time, and self, suffering and salvation meet and mingle, I pick up Jacob Needleman’s Time and the Soul (gifted to Viral by a dear friend). I read it very slowly, over many weeks. And as I do so certain lines pounce off the page, like so many jungle cats. Felling me with their fierce grace. Gleaming gold with insight. Here are a few of them:

“The root of our modern problem with time is neither technological, sociological, economic nor psychological. It is metaphysical.”

“…All this remembering is only the work of a small part of the mind, mixing its accidental thoughts and feelings with scattered, random fragments of the past. We have never deeply remembered! We have never really gone back in time. We have never seen the roots of our being with the whole of our mind.”

“The personality is formed to protect us from metaphysical pain. And it does this very well. Too well.”

“In the false world, Time is our enemy, but we do not really know how powerful it is; we don’t really feel the deep, rolling, cruel power of the river of time, so busy are we managing the crisscrossing waves on the surface. But in the real world, there is a wind that comes from, “the center of the universe,” from the “beginning”– in the language of myth, “long ago,” “once upon a time,” a message and a messenger were sent to humankind. This messenger is always being sent.”

“How insane to believe we can grasp anything essential about time without opening the heart? …What could be more painful than to try to manipulate the greatest force in the universe– Time — with our nervous minds, our anxious hearts, our tortured bodies? Until we can let in what the masters of wisdom called, “the attention that comes from the source,” “the wind that rises from the center of the world,” or simply, “divine love,” we can no more deal with time than we can deal with volcanoes or earthquakes or the movement of the earth around the sun.”

“There are no tricks or techniques that can make us feel that we exist. And it is only at such levels of feeling– and far beyond such levels– that time begins to “breathe” in our life. Only with such feeling do we begin to breathe differently, literally and figuratively. According to the ancient wisdom, when a human being breathes differently, the passage of time takes on new properties. There is a new feeling of self that appears when a man, or woman, truly and genuinely steps back from himself, looks at himself and then…? And then: enters himself.

***

One day I close the book, and recall Viral’s painting. I pull it out, and revisit his words, they read as crystal clear, and as refreshing as spring water. I feel a softening and an opening within.

Time is a type of force. There’s a presence that goes beyond the conditioning of time and of force. It’s what’s rooted in yourself vs what is rooted in projections of yourself.” ‘

It is time to breathe differently.


Uncapped

May 2023 Note to Self

My fine-tipped pen is uncapped and will remain so for the foreseeable future, for I dropped the cap somewhere in our garden which is rampant with grasses, thick with flowers, some of them, (some would say many of them,) weeds. I can stop to peer into the wild thicket, or I can continue to write. At risk of seeming wasteful I say, why waste time searching for a stopper?

Aren’t we all uncapped pens on this Earth? And don’t so many of us dry up before we’ve dared scribble a word? Such reckless timidity. Do we believe we have nothing to say? Or are we waiting for someone to introduce us? Thinking that will be our cue, to walk on stage and begin being brilliant. There is no introduction. Brilliance is not a requirement. This ground is our stage. This breath our cue. So do it. Sing. Dance. Doodle. Write. Whistle. Cook. Paint. Make a mess. Make a face you’ve never made before. Walk. Wander. Prowl across the skin of your days like a hungry animal. Stalk wonder. Don’t wait uncapped and uninspired. Spill your ink.

The hand to seize is your own. Pull yourself onto the dance floor. It’s your home. Let yourself move the way you want to. Notice how it feels and what happens next. And do not forget to lose your appetite for other people’s admiration. Don’t drink from phantom springs. Applause is a racket we were trained to be pleased by. I no longer remember why. But if your hand-clapping pleases me, I will be persuaded to turn more tricks for your treats. The sand does not stop slipping through the hourglass, and I will have forgotten what I truly want. Chasing a bubble and when it bursts, chasing another. How frantic life feels when it is outward facing!

Let anonymity be my blessing. Let me be fed by the feast of my own life. Let my heart be homespun and full of praise. Today I want to be the bowl that life pours into, not the person who lifts the pitcher and believes she does the pouring. My voice, but one voice among billions. Does this makes me lonely?

Only when I am not listening.


The Vanishing Point

The disconcerting phenomenon of learning something new, and feeling you somehow know less than you did before. Bonafide knowledge is always a subtraction of certainty. If this is confusing, it’s because you are used to equating not knowing, with ignorance. But to know that you do not know, is the truest form of knowledge there is. The one all other forms of knowing rely on.

Your deepest knowing must be sweet and soluble.

What sits on your tongue like a pebble is not a sugar cube. Knowledge you can grasp is a fistful of coins. Please don’t strike a bad bargain. Too many have traded their days for small change.


Catwalk

Listen. Let your voice fall truly silent, that velvet soul tones might speak. The tiredness you feel is a signal of the will rushing, when the spirit wishes to be still. There is a light in you now that has its own logic, purpose and place. You are not its creator. Learn to respect it with a serious sincerity and an easy joy. Trembling beneath your skin is the wisdom, peace and completeness you long for. But you are a little addicted to the thrill of the chase, the fierce edge of your want. Slow your steps to the pace of your heartbeat. Match the fullness of the moment with the fullness of your attention. Why do you scatter yourself like a startled flock of birds? There are better ways to move through the day. Consider the sleek coherence of the jungle cat. Unhurried even when moving her fastest. This too can be you.


Hole-y Work

A small and metaphorical hole in your sleeve steals your attention. Leaves little for all the threads that are still brilliantly holding the rest of your life together. This would not be an issue if your attention to the hole conducted itself usefully, if it located the nearest needle and thread and set to work repairing the rent. Instead your attention sees fit to play the role of a professional mourner, one of those women called in to village homes when someone has recently passed. The expert keener will beat her breast, and wail loudly, enacting a theater of grief, pitched to bring complex emotions to the surface, designed to sanction the scream stirring within the numb and newly shattered heart– to scream in its place, that pent-up pain might feel a slight release. This can be holy work. But what your attention forgets is that in the villages, after a respectable period of lusty lamenting, the professional mourner dries her tears. She straightens her sari, enjoys a steaming cup of coffee and a hot meal. She returns to the rest of her life with vigor and interest in all its still working parts. The gaping hole of loss is still part of her fabric but no longer its centerpiece. But you my friend permit every small tear to snare you entirely and with no clear end. You lament far too long– and over far too little! You think this is a form of dedication, but really it is just petty and unprofessional. Don’t be so incessantly seduced by every tiny imperfection in your life. Don’t sit and stare at the ripped places, like a person who will not leave the graveyard, even after the spirits have moved on and are dancing elsewhere.