Category Archives: Happenings

She Wrote Her Own Story: Inside ‘The Accidental Goddess’ with Archana Raja

I began training in Bharatanatyam in my early forties. I’d adored the form since childhood, but felt too clumsy, and then too old to start. Until one day, yearning outstripped self-doubt and the universe placed Archana Raja in my path. Archana draws forth beauty and truth from seasoned practitioners and raw beginners alike. To be her student is to feel both nurtured and challenged. Her classes reveal the exhilarating crucible that dance can be—surrender to the discipline, and it will forge mind, body, and spirit in powerful ways. I am not a good dancer, but I know with certainty that every hour of training with Archana made me a more alive and conscious one. I loved it beyond words. An unexpected cancer diagnosis forced me to stop (temporarily). Now, after a year of treatment, I am slowly finding my way back to dance and hope to resume training this fall.

Through it all, I have remained entranced by Archana’s passion, prowess, and creative integrity. She is a true artist—one who enlarges the world, by following the summons of her muse—even when that means leaving behind hard-won accomplishments and daring to start anew. For close to three decades, Archana lived and breathed Bharatanatyam. She has trained and collaborated with some of the most renowned names in the field, garnering a large following. Five years ago, under the tutelage of Kasi Aysola, she began training in Kuchipudi, a lesser-known Indian classical dance form from Andhra Pradesh. Kuchipudi grew into an irresistible calling. She has now dedicated her path exclusively, to learning, performing, and teaching this form. If she was electric as a Bharatanatyam dancer, as a Kuchipudi artist, Archana is incandescent.

In The Accidental Goddess, Archana turns her gaze to the origin story of the popular South Indian folk deity, Yellamma. The legend, tracing back to the Mahabharata, introduces Princess Renuka and her marriage to the revered sage Jamadagni. It is said that her chastity, and the purity of her devotion to him endowed her with the miraculous ability to carry water in unfired pots, fashioned from mere sand, and balanced on her head atop a coiled black cobra. One fateful morning whilst fetching water at the river, she chances upon a Gandharva couple engaged in love play. For the first time, a wistful desire tugs at Renuka’s thoughts. And in that very instant her powers are irrevocably shattered. Now, no matter how hard she tries, the sand falls apart, the pot will not hold. The dark serpent uncoils silently and slithers away. Enraged by this ‘loss of chastity,’ her husband calls for her beheading at the hands of their son. Renuka’s desperate pleading is of no avail. Taking his father’s behest as law, Parashurama (an avatar of Vishnu) decapitates his mother. In the story, the pleased father grants him a boon, and Parashurama promptly demands that his mother’s life be restored. In what is perhaps one of the earliest body swap stories known to humanity, Renuka’s body is fastened to a head that is not her own, and the goddess Mariamma, “Switched Mother,” is born. But what becomes of Renuka’s head? It is destined to remain bodiless. It is this disembodied head that becomes the goddess Yellamma, “Mother of All.”

Both Mariamma and Yellamma are revered as manifestations of Shiva’s consort, Shakti. The latter less mainstream but no less beloved. Down through the long, serpentine corridors of time, Yellamma’s worship has continued. Fervent, unbroken, and ever in the margins. This is a story that seethes with casual violence, unchallenged patriarchy, charged symbolism, and uneasy notions of womanhood and virtue. Through this piece, Archana seeks neither to tame nor resolve the legend; instead, she dances through its fractures. She draws us into the paradoxes and questions reverberating at the heart of this myth, and our modern world. What she creates is not consolation but magicked mirror—an invocation, and an invitation. To step closer to truths often ignored—and be transformed in the process.

It was a privilege to talk with her about the origins and evolution of this labor-of-love, which will premiere in the Bay Area on August 30th, 2025. [Details here.] What follows is an edited version of our conversation.

Awakened by a Myth: London exile, a stray lullaby, a wounded goddess

Pavi Mehta: Let’s jump right in. When and how did you first encounter Renuka’s story?

Archana Raja: In 2022, I was in London for eight months because of my husband’s work. The change was mentally shocking—London is an entirely different landscape, and I wasn’t sure what was going to happen to my dance. I was missing my mom and in the back of my mind, I wanted to create a piece about her. I know a lot of South Indian dancers who leave their homeland often try hard to fit into their current milieu. I don’t blame them. But in trying to appeal to the diaspora you start wanting to be something different. I was very aware of this tendency, so I consciously tried to resist going in a non-traditional direction. Then one day I stumbled into a lullaby online that led me to Yellamma. The coincidence startled me. Why did this myth surface, just when I was thinking about my mother?

I knew the outline—Parashurama beheading his mother—but the more I dug the richer it became. Mariamma, I knew (I’d visited her shrine after my marriage), but Yellamma was new to me. I learned she has a strong following, revered across South India, especially by the transgender community in northern Karnataka. She is celebrated in the Bonalu festival of Andhra Pradesh. Yellamma doesn’t come with any glorified beauty. Her icon is her own severed head. She is worshiped mainly by marginalized women and men who relate to her tumultuous life and its suffering. This fascinating goddess who carries pain even in her existence as a deity—she caught my attention. I kept thinking—what is this? Why is this story bothering me?

Pavi: There’s something magnetic about that image—a goddess whose icon is her own severed head. What did you do with that initial pull?

Archana: I’ve explored this story in every way imaginable because it’s so wild. In London, when I first discovered it, I put it on paper—I was hesitant to make it into dance. As I kept writing and developing scenes, I realized the story is pregnant with metaphors, there are so many ways to interpret it. I knew that whatever I created, I would be making the story my own. I also found many versions that were highly satirical. A very popular version that caught my eye was the Yellamma nataka, performed by transgender performing artists. They use comic relief to tell the story, but with very severe undertones of sadness and grief.

Pavi: What’s an example of how they bring humor to such a tragic story?

Archana: For example, in one of the most riveting scenes, the unborn Parashurama declares, “I will not descend from your unholy canal. I will break through your spine to emerge, because I’m a man of purity!” They depict this by literally tossing a baby doll into the air from the performer’s back. Basically, they tell the story in a way that makes it accessible to the audience. The mythology has a happily-ever-after ending—when Parashurama asks Jamadagni to restore his mother’s life, his wish is granted, and suddenly it’s not a problem anymore, that the husband ordered the son to chop his mother’s head off, and the son obeyed. Most of our mythological stories are like this. The Yellamma-Renuka story comes with complexities. On the one hand she is ardently worshipped for being beheaded by the great avatar, Parashurama. But was he really great to sever his mother’s head? With this piece, I wanted the creative license to show these contradictions and explore why the story is both problematic and relevant today.

I started with a nindastuti— [a unique form of hymn in which the deity can be scolded, teased, even trash talked by the devotee.] The form portrays a special closeness to God. For the first time, I wrote a poem—

No man or son came to save her.
Is she Maya or magician?
Is she tattva or belief?
We don’t know. Who is this Amma?
No man or son came to save her.
So she wrote her own story.

I gave these lines to Arjun Bharatwaj, a Kannada scholar. From this he composed a set of verses in Kannada. What he gave back to me took things to an entirely different level—it was like Tirukkural, where every word is loaded. A beautiful line of his is, “Yaru illa bharade, illa baru du illa“—”No one will come, no one came.” He brings an emotional depth to each word. When that came in, the work transformed. I turned it into a geegi pada—a Kannada folk genre sung by women as performing artists. It made perfect sense to me—to have a woman’s story shared by a woman. Then I put it on the shelf. A lot happened in my personal life, so I really didn’t do anything with the piece after that until 2024.

Pavi: What brought you back to her story?

Archana: In 2024, Rasika Kumar from Abhinya Dance Company curated a festival for new works. My teacher Kasi said I should pitch this. I was like, “I don’t have anything! Just this geegi pada.” He said, “Just go do it. Maybe this will push you to make this bigger.” So, for the first time I performed two scenes from Renuka’s life.

Pavi: Why the focus on Renuka specifically? What were you drawn to in her story, and what has Renuka come to represent for you?

Archana: If you asked me this a year ago, I wouldn’t have had an answer. I’m an artist who was not interested in social or political themes. I love having a parallel universe with dance, I can be vulnerable, fun, free, angry in that space, but it isn’t really me. My works were never connected to my actual life. So, for me, this started as just a mythological story.

But this work proved me wrong. As a creator, you need to have so many minds, an emotional mind, a logical mind. I think all these dimensions slowly came together and told me, “Hey, listen– you’re telling the story as is– but who’s the protagonist here, and what is your throughline? So, I had all these questions. And kudos to my mentor, Kasi, because he’s the one who asked me to describe this work in three words, and work with those three words as hooks in every scene. The words that I came up with characterized Renuka for me: Lack of choice. Wild. Survival. Those were my three words. They became the anchors for every scene—and Renuka was the force carrying her story forward in every sense.

For me this is clearly about Renuka—Yellamma is sort of the outcrop of that. And slowly, Renuka began becoming Archana. She made me realize so many things—she changed me as a woman, wife, daughter, as a woman in this society. She made me rethink gender roles and see the subtle yet ever-present patriarchy in our families. Patriarchy varies in degrees, but it’s always there, trickling down in deceiving ways. When you really read into it, you see how it is still present and problematic. So, I really hand it to Renuka. She emerged as a character through this work. She gave me the blessing of being able to identify and recognize these things, and act accordingly. She made me more aware.

Playing with Fire: fierce emotions, fear of failure, finding balance

Pavi: How much of the story are you telling explicitly versus letting the audience feel their way into it?

Archana: I started with just straightforward scenes—her introduction as a princess, her marriage… everything was depicted chronologically. Maya Kulkarni, a choreographer in New York, saw the work and said, “Archana, the story looks great, but you need to ditch the chronology. You’re not telling the story—you’re being Renuka. Renuka is talking. The drama lies there. Don’t rely on linear scenes—that’s too elementary.” It was great advice.

Now things unfold as if the head herself is reminiscing. She wakes up and realizes, “Oh, I’m just a head!” Then the flashbacks start, and we move between the past and the present moment, almost like a movie—I’m a movie buff. The version I just did has the ghost of Renuka haunting her. Of course, the head is Renuka too, but in a different avatar. So, it gets you wondering, what is the mind really? What is the body? What is the soul? She experiences her entire lifetime in a kind of time warp. And then suddenly, it hits her that she’s back in the temple, with bells ringing. There’s a scene where I show that dichotomy—once she’s beheaded, the head keeps growing back, and the music from the opening scene comes back — only this time it’s haunting. Once in a while, the narrator emerges from within the character and begins to talk. You can think of it as a separate narrator, or Renuka herself—I leave that open for the audience to interpret.

Pavi: Let’s talk about your visual choices—the vibrant red sari, the darkness around that luminous head. Did that imagery come to you immediately?

Archana: This is the South Indian in me. I love kumkum. I use kumkum to show her pain and struggle—as the piece progresses, her neck slowly grows more and more red, filling up with kumkum. The other aspect to this is, they do kumkum archana for goddesses. So, she’s filled with kumkum. It signifies the violence, but also sacredness.

This work has become a ritual for me. When the lights come on, I bring her crown on stage and place it on a simple bench. Much is said with that gesture. When you attach a face to something, it’s powerful. When you have to imagine the face, it can be even more powerful. Under that crown, people can visualize her face as happy, sad, or anything else.

Pavi: Is there a particular stance you are taking within this ancient story– or are you leaving that to interpretation?

Archana: Misogyny and patriarchy are the villains in my story. That’s my stance. The story goes that once Renuka and Jamadagni were married, she was given the monotonous job of making pots every single day—symbolic of many women forced into mundane roles, with no voice of their own. Finally, she is abandoned and cursed– for what? Just for a single thought– this was extremely problematic for me. Renuka births a son, thinking he’ll be her savior, but he ends her life. So where does this end? Whom did Renuka do all these sacrifices for? I think folk stories are hella contemporary. One version I did began with these words, “Resilience in women—a quality often celebrated and glorified. But resilience at what cost?” In the end, she says, “I don’t want my head restored to a body. Let me be Yellamma. My head is enough. You worship me for my head. Because the minute I have a body, you shame it. You say all sorts of things about it, and you sanctify it to the extent that I am not able to keep up to the perfect standards that you demand.” Who’s the real winner in this?

My own conservative upbringing often conflicts with what the story tells me. I’m constantly uncomfortable in this process, and there’s some good in that. I used to be scared to take a stance, but now I’m confident because Kasi pushed me. He said, “Your dance says what you are thinking. When you start believing in your stance, your choreography will become clear.”

Pavi: There’s something about what you’re describing that feels like you’re playing with fire—I imagine you picked it up innocently, but it’s almost like catching a tiger by the tail. This story burns with such powerful energies: rage, discipline, devotion, patriarchal force. These are not delicate things. There’s something about the discipline of the art form that seems essential—without that container, I imagine these forces could tear someone apart. What’s it like to embody her on stage?

Archana: Bringing the discipline of Kuchipudi to this work has been exhilarating. Something told me it had to be Kuchipudi. Now I have a Kuchipudi brain—I’m comfortable speaking its language. But even with that discipline, I found it very challenging to embody this character. To the extent that I wouldn’t want to do the work because it gave me so much grief. There is an emotional upheaval that comes with trying to embody Renuka. To try and embody her character for 50 minutes straight and not be affected was a big challenge. If I completely get into the story, and a part of me forgets I’m performing, I’m putting myself at risk. I might just collapse on stage. You have to embody the pathos, but you also have to perform it, for it to be felt. When I watched myself on recordings I’d think, “This is really bad! Where is the technical virtuosity? I have no upper hand here. Am I lacking training?”

I kept brooding about it in the beginning, I’d say to Kasi, “Oh my God, maybe this is all cringe!” Kasi said to me, “Hey, maybe you need to start liking yourself. You need to start liking the work. You need to understand that this is making people feel something.”

Pavi: That brings up something about the aftermath of the performance. I imagine by the end you’re still living in that vibration…

Archana: Part of me doesn’t want to get too attached to the story because of the emotional after-effect but when I fully embody the character, I also experience how much this moves other people. So, the work has been about simultaneously managing to be a character, managing to be a dancer, and holding on to all the sensitivities of the story. When I finish a performance, I’m often crying in the green room. It’s very emotional. After one of the shows, the videographer (a white man) was in tears. He said, “I don’t know what you did today exactly. But I know there was a woman who went through something she shouldn’t have.” My teacher’s encouragement gave me confidence, and love from the audience gave me solace. Over time the work has matured me, there are all these small learnings that I’ve had. In the beginning I didn’t have perspective. Now I can hold the work away from me, examine it from a distance and say, “Okay these are the problems here…”

Of Music, Mayhem & Manifestation: breakdowns, backlash, sacred emergence

Pavi: The music seems central to the work’s power. How did that develop? And what was the collaborative process like?

Archana: I have a love-hate relationship with the music because it’s taken such a toll on me. I told my husband, “By the time I finish this work, I’ll be significantly older!” The music is fantastic because of Rohit Bhat, a musician from Bangalore. He’s Kannadiga—I had total faith in Rohit. For the opening I wanted a scene that was the opposite of dark. Rohit composed a beautiful song for Renuka’s entry as princess. He used the Ananda Bhairavi ragam, which is popular in Kuchipudi. I was particular that the final scene had to be powerful, but also strange, because this princess is strange. Her head has been severed, she’s been betrayed, she’s going delirious. This final scene is about resurrection– the transformation from mortal to myth. Renuka receives flashes of Yellamma’s image. Rohit came back to me with Sucharitha ragam for this scene, which has this feeling of being almost off-tune—it evokes this haunting feeling, a sense that this is a story of love and loss. The geegi pada here also has Arabic undertones. I’m inspired by modern music, and the ways you can break Carnatic rules while using Carnatic instruments. Much of my inspiration for this comes from Akram Khan.

When Rohit got busy and couldn’t continue, Poornima, a musician from Singapore, stepped in. By then I knew the piece needed a recurring theme in the form of a lullaby. I told Poornima, “I need a lullaby that can shift from soothing to haunting with a single altered note.” [Archana hums a few bars of a captivating melody that shifts eerily and unexpectedly.The effect is visceral.] The minute Poornima gave me that, I said, “Okay, you’re doing my music!” Unfortunately, Poornima later had a personal emergency and wasn’t able to lend her own voice for the recording. So, I used her composition and sang it myself. My teacher Kasi lent his voice too, for Parashurama’s character in one of the scenes. Then there was a point where I didn’t have anybody to put all this music together. So, I actually put out a call on Instagram. Thanks to my community of dancer friends, I was able to find a sound engineer, and we put everything together in two weeks.

Pavi: It sounds like the process of making the piece mirrors some of the tumult of the story itself.

Archana: This work has been such a test. I had a show in Austin, but I didn’t have music until the eleventh hour. I worked day and night. People who gave generously at the beginning left the project later saying they could not attest to my work. I had to rewrite and redo many things. There was also conflict from other communities—I faced criticism from people who didn’t believe that someone from my background had the right to tell this story. It was more of an attack on my identity for taking up the story and doing it. I had to make it clear that I am an artist—that’s my foremost identity. When I was growing up, my mom often used to say: “If something has to happen, it will happen. If it’s its time to happen, it will happen. Don’t worry.” That helped me persevere. And after all that, it has happened. I’m doing three shows now, and hopefully more in the coming years.

Pavi: What impact are you hoping to have on your audience? What would make this a success for you?

Archana: I think I’ve succeeded if someone watches the show and it makes them think about one woman in their life who has struggled, who has been resilient—or not. If it makes them pause and reconsider their mother, friend, daughter, or any woman they have judged, women they thought should be a certain way– if this work makes one person reconsider their position, I’m happy. Some of the proceeds of this work go to Rama-akka, one of the trans women who actively performs Yellamma nataka. Whatever I receive, a percentage goes to her as well. Some of the proceeds also go to a small organization that helps adolescent girls in rural Bangalore get access to sanitary napkins, so they don’t interrupt their education. Also — I do have a surprise for the August 30th show. Part of me is very convinced about it, part of me is extremely doubtful. There’s going to be another body involved. Let’s see how that goes. It’s going to be a wild experiment!

Ultimately, this work is my attempt to invite audiences to listen to this strange story. I offer it up as a ritual, a prayer, to anyone who wants to be part of it. I hope to take them into this experience—I hope they will come along with me on this journey.

The Accidental Goddess premieres in the Bay Area this Saturday. Sunnyvale Theater 7-8:30PM.


Love’s Permutations

This week I’ve been captivated by the story and songs of Andavan Picchai. Born well over a century ago, as a child she had a lisp and spoke little. She had a tutor but little scholarly inclination. Her father (fondly, they say) nicknamed her Nirakshara Kukshi—Illiterate Belly. She was twelve years old when, in a vision, she was approached by a resplendent young boy—Muruga—son of Shiva and Parvathi, who, after trying unsuccessfully to coax her into conversation, took his spear and traced the word Om on her tongue. The experience was an initiation. The lisping, retiring little girl was transformed into a veritable fountain of inspired verse. Directly after the vision she went to her father and delivered her first poem in spectacularly chaste Tamil. The gist of it: “In the beginning, there was only one. It became two and then three and then many.” Many remarkable stories about Andavan Picchai (whose name means God’s Charity/Alms) followed. She was a householder, a wife and the mother of six. She carried out all her responsibilities, and within the rhythms of her daily life never lost touch with the divine presence in her heart. She was in the world but not entirely of it. Her life, punctuated by profound interactions with Sri Ramana Maharishi and other realized figures, her poetry suffused with the strange metaphors and scintillating clarity of the mystics:

We were born conjoined,
hence our undying bond.
We’re as inseparable
as inner world and outer.
It’s time to make our peace, you and I,
to drown our differences
in the sky of unstruck sound,
in the embodiment of the ultimate name,
in the wisdom of illumination,
Only when you are can I be!
Let’s hit the stage then,
dance our duet.

                  Surrender, dear Mind,
                            Go on. Surrender.

– translation, Arundhathi Subramaniam

Surrender, dear Mind,
Go on. Surrender.

I read those words, and they pierce my core.
This letting go is what I’m being called to.

*

During the stretch when Viral was in the most debilitating stage of his illness, I remember someone saying to me, “I’m so sorry you have to see your husband like this.” I know the words were deeply well-meant. I understood the kind intentions, but still bristled inwardly. My pride stung by what felt like pity, and the singling out of my most intimate relationship, and what it had morphed into, as something lamentable. As excruciating as the circumstances were, to be able to serve at Viral’s side precisely in this period when he was most removed from his earthly capacities was to me, a fierce privilege. When he could barely sit up, to coax him into eating, to feed him by the spoonful, to still his shivering body during spinal taps, to hold his hand and whisper reassurances as he was wheeled over to CT scans and MRIs, to stroke his forehead when he woke confused in the middle of the night, to assist with his bed baths, to guide him through the bizarreness of various catheter systems, to help with the bedpans and the cleanup—to be hands on with all of this was a searing honor. At the time, I was too immersed in all of it, to be able to articulate what was stirring within. But deep inside, something in me knew that if the raw demands of this time felt injurious, it was in service of an initiation. And this was just the beginning.

In the early weeks after discharge, Viral’s face held the stiffness of a mask, his eyes were shrouded, he used a walking stick, his appetite was birdlike, and his presence flickered, like a small flame—at once full of light, but just a breath away from being blown out. In those weeks it was still a challenge for him to track the year let alone the month we were in. He wasn’t always sure where we were, when, or why. We had a little chalkboard on which we would write down some of these orienting details, including his latest counts. My little niece, Dhira, took particular pleasure in updating it and quizzing him on it throughout the day. In that initial month and a half, it was difficult for him to retain memory of any new interactions. Visitors who came, appointments that were attended, outings that were made—all forgotten within hours, wiped seemingly clean from his memory. In those days he was easily fatigued, needing a nap after almost any kind of exertion. Each time he woke up, whether it was after ten hours or ten minutes, he would wake with the sense of having been in a parallel universe, with the sense of having jumped timeframes. During this period he wore a calling bell that he would press upon waking. I would rush to his side—my little niece often dashing up the stairs ahead of me. She’d cuddle up to him, her head on his chest, (making me smile despite the ache in my heart,) through our presence, touch and words, we’d swim him back to shore, returning him to this world, this reality.

In those weeks when I was not by his side for even short periods, he turned subtly anxious and unsettled. On the day of my double mastectomy, I had to leave home a little after four in the morning (a beloved friend woke at 3AM to accompany me and my sister to the hospital). I left a letter for Viral with my brother-in-law Ramesh. In it I let him know where I’d gone, who was with me, when I would return. I reminded him who he was with, how amazing our lives are, and how much there is to be grateful for. Viral read it repeatedly throughout the day.

As the weeks pass, we see color return to his face, and his eyes brighten. As he gets slowly steadier on his feet, he begins to insist on helping with the dishes, and making me coffee (both tasks, vintage Viral). He starts being able to recall with greater accuracy where we are and when. He starts using his medication checklist with more reliability. After a certain number of repetitions, certain things begin to encode themselves into his memory. When my sister, brother-in-law and niece leave, it is the start of September and we have come a long way, with yet a long way to go. Viral and I are back in our own home, back on our own. Back where this whole journey started. Everything is at once both dearly familiar and undeniably altered.

As I’ve shared before, Viral in the hospital inhabited a world apart. I’m grateful for the inward conditions that allowed him to be, in an almost surreal way, psychologically protected from the direness of the situation, the degrees of devastation to his once strong body, and the confusion in his superlatively capable mind. Through that period he remained connected to something beyond circumstance. This gave me deep solace even as it awed me. (Even as it awes me now to look back and see how dedicated I was, under the duress of that time, to transcribing his words.) Not long after he was discharged from the hospital, things changed.

It was almost as if a certain curtain that had propitiously lifted in the period of crisis slammed down with surprising force. The hospital, and his own inner conditions at the time, had provided a world apart from this world. As he slowly returned to everyday reality, emerging from the impenetrable remove of all he had been through, he came into increasing contact with all that had changed—but without the same degree of access to the extraordinary instinctual processing and integration of change that are his hallmarks. Where before, he had been protected from any deep sense of loss, he now found himself abruptly bumping up against the constraints and limitations of his situation in daily and quietly painful ways.

Glimpses from fall/early winter—

Viral struggles to remember how I take my coffee, how to make our oatmeal, and what I must and mustn’t do during the span of my radiation treatments. He has forgotten how to navigate paid parking systems, fill his prescriptions and coordinate his disability payments. He has trouble recalling the way to the post office, the hospital, the grocery store. He often loses track, mid-drive, of where we are going. All this, while struggling with the neuropathy in his feet, and the heightened sensitivity of his nervous system. There are rashes, bruises, bleeding and cramping and sleepless nights to navigate. He is often cold and uncomfortable, often preoccupied with thoughts of what he must do to ease these symptoms. He asks what feels like hundreds of questions a day. Sometimes more than a dozen before we have gotten out of bed. [Leading me to eventually enact a ban on all questions until my first cup of coffee.] He is sometimes overwhelmed by tasks that used to be trivial. He tears up easily. Most of the time in gratitude, or empathy. Occasionally from a sense of lostness. Looking back I realize how natural all of this is.

In recovery from a period of profound precariousness he is relearning how to be acutely mindful of his well-being again. Before he can relax into the rhythm of this new normal, his system must reclaim itself, must become to some degree self-involved to meet its new boundaries and vulnerabilities. None of this is easy, all of it comes with a certain weight, making it difficult to be light. This feels obvious now. But at the time, there were many moments when seeing my quintessentially sunny, self-assured and equanimous husband displaying even mild signs of anxiety, heaviness and mental fragility filled me with despair, left me desolate. I have grown so used to drawing my strength from his. Now I need to change this. Now I get to change this. For eighteen years he was my pillar. Now in this nineteenth one, I must be his. Most days I am up for load bearing. On others I feel like a house of cards. It sometimes feels like I’m running on fumes. But in truth I am running on prayers. On blessings that surround us seen and unseen. We have incredible families, angelic friends. We are receiving so much and we have forces beyond naming rooting for us. It is time to pull my socks up and get it together as best I can.

I do so with patchy grace.

*

I have never been a particularly systematic planner. My style of organization tends to be organic and mostly in my head. That isn’t going to cut it now. I need much clearer systems to ensure we are paying our bills, refilling our medications, sending in disability applications, restocking groceries, and keeping track of our appointments in a timely way. We must devise, implement and iterate on a series of new systems to keep us afloat. I create a series of checklists, and daily planner templates, I begin managing both our calendars, and keeping track of our bills. I start doing things that most people my age have been doing for decades. If this is hard it is partly because until now I’ve been very blessed, or very living in a bubble, or both. Either way it is the dawn of a new era in our marriage. In this new era, it will sometimes feel like everything is my responsibility. It will sometimes feel like the stakes are very high, and any slip up will cost us dearly. It will sometimes feel like I have been burdened unfairly beyond my capacities, that I do not have it in me to attend to the needs of my recovery in addition to Viral’s. New depths of grief, hopelessness, and their misunderstood triplet—anger—will stir in me, erupting in unexpected moments, then leaving me trembling, covered in the thick ash of contrition and shame. Only after many months will I consciously register the fact that when Viral’s doctors ask him, “How have you been doing since we last met?” his gaze instinctively turns to me, and I automatically begin answering on his behalf. I slowly and not without a degree of resistance come to realize that I am now the de facto Chief Keeper of Viral’s Memories, and default Head of our Household. Old divisions of labor and responsibility no longer apply.

*

Ever since we got married I’ve always slept on his right side. But now for some reason on certain days I feel like I need to switch sides, and when I do I’m able to sleep better. It strikes me that there is something metaphorical about this—in more ways than one this time is asking me to switch sides and take up a new position that, for now at least, is my proper place. Sometimes after we have switched sides Viral will get up to go to the bathroom again, when he does so I have to remind him to come back to the new side. I learned this the hard way—after being sat on in the middle of the night. I yelped like an injured puppy and he was so contrite and sorrowful. Looking back I see the humor of it all, but in the moment it was all too much. For all the years that we’ve been married, Viral has been the one who checks the doors at night, makes sure they are locked and that the exterior lights are switched on. I realized recently that I need to start doing this. He assumes he is able to still take care of this—and on most days he is right. But there has been at least one night when we left our front door open. These are not huge responsibilities to take on. I should be able to do it all without breaking a sweat. And right now I feel able. But there are times when it feels like what is being demanded of little old me is—Herculean. Viral this morning remarked with a smile, “I can see why you were so taken with the OG me.” “What do you mean?” I asked. “Well, I just had everything so managed.” “That you did,” I said, “Even what you didn’t have managed, you had managed.” Now it’s my turn. God help us!

*

Viral’s passport expired in 2016. Yes that’s right nine years ago. Somehow—after his diagnosis in 2015 we lost track of it, and since air travel was out of the question with his immunity we never had the impetus to do anything about it. Filling out the form, getting it printed, getting copies made, making the appointment to submit it today—thankfully wasn’t too complex a process. But there were some unexpected hitches. The passport photos that the rather bumbling UPS store clerk took were not up to snuff. And I had forgotten to take a scan of the reverse side of Viral’s Driver’s License. Thankfully, L, the Post Office officer, had a wonderfully kind and competent way about her, she took a fresh photo of Viral and made a copy of his driver’s license using their scanner. I was so grateful for her manner. So unlike the officious distant demeanor of so many officials in passport offices. Sending that package off for renewal felt like a small but significant milestone. Viral was always such a champion with filling out forms. So unintimidated by red tape and officialese. Yet another area that I need to get practiced in.

*

On some days Viral seems to have lost his axis and his contours. There is a sloshiness to him, a puppy-likeness that follows me wherever I go, agrees with whatever direction I set, falls in line with whatever preferences I put forth. This makes me a little lonely, more than a little lonely at times. He walks so hesitantly and gingerly. He winces at so much. His system is so sensitive and mine so sensitive to his sensitivity. The childlikeness in his manner, the disorientation, the looking to me for all things at times becomes more than I can bear. I tell him all of this while sobbing uncontrollably and he holds it all and he holds me. Not flinching, not dissolving into tears himself, but with a quiet, present, understanding strength. It is an old pattern in our relationship. I am the one who falls to pieces, he is the one who picks me up. And now even though he cannot do it in the old way, he is still there for me. It is almost midnight when my tears dry up. I want to be better for him, I want to be better to him. My love my love my love. This is the journey we are on together. We will make it through. You will make your way back to me. You will make your way back to you. And that back will be forward.

Also: In the deepest sense we are already there.

*

I know I must be patient with this, and not force him to take form prematurely. And I must give myself the same room. Form will find us when the time is ripe. For now I must work on being more encouraging, and more accepting of the fact that at this moment we are both in separate cocoons, swaying from the same branch. His imaginal cells are working exactly the way they are meant to and so are mine. Self-assessments in this goopy stage are self-defeating. I must learn to love this strange feeling, I must learn to see the person I fell in love with and am still in love with. I must let myself find him again and again, in the beautiful, courageous, utterly tender being by my side.

*

I feel like I am always being caught out of patience. In certain moments I scold Viral like a shrew. I must tame her. He leans on me with so much trust, for so many little things during the day. I am able to be patient and pleasant and helpful ninety-nine times out of a hundred, and that hundredth time I am Vesuvius. I shake and sob, and I get remarkably self-righteous. I hate how martyr-like I sound, how I enumerate all the things I’m having to do. I am so petty and small-minded and downright mean sometimes. Viral is never any of these things. In nineteen years of marriage he has been strongly annoyed with me a total of three, maybe four times. But he has never, not once, been angry with me. I realize this is an extraordinary fact. One that I can tend to gloss over, take for granted. It would do me well to sit dumbstruck in front of it more. While he is not yet able to organize himself in the old way, let alone track my treatments, or remember the side effects I am dealing with, his lapses are lapses of capacity, related to his condition. Not like my lapses which are lapses of kindness and consideration. I always apologize abjectly afterwards, always let him know that I am fully in the wrong and he is perfect just the way he is (and could use a little improvement à la Suzuki Roshi’s quote that he was so fond of). He never holds anything against me. Always tells me all of it is correct feedback. It really isn’t. Only a small portion of it is feedback and the rest is just bad behavior. I am so motivated to change.

*

I am trying to practice stillness, spaciousness and availability for Viral. I do so well all day and then crumble at night. I howl and moan and cannot stop the tears. I thank him afterwards as I always do. Take back all my harsh words. He is healing me, even though I sometimes say that I am all alone. Oral chemo has not been gentle on my system. The strangeness of not being able to share the details of my medical journey with him is sometimes just a minor detail, other times an abyss. When I fall into it I fall a long way and am lost for a long time. Sometimes an hour, sometimes a full night. A few days ago in the early morning moments I had the realization all over again, that this is a very rigorous, vigorous clearing process. It is shaking up the root of the root of my security, striking at the base need for comfort and safety. This disruption is to be expected. I must be willing to let it all go. To fall like a feather into the chasm. Instead of flailing like a hippopotamus trying to grow wings.

Up close so many moments feel semi-tragic, but truth be told, when I zoom out, I see a romantic comedy. [One of these days we will finally get around to watching 50 First Dates.]

*

Some days I think about how a woman going through menopause is navigating a seachange in her body that is as dramatic as puberty. This season of hormonal flux implicates every system, it can fracture sleep, create sudden fissures in emotional stability, and flood the mind with outsized fears. Temperature regulation can no longer be taken for granted. Alterations in brain chemistry can make everyday tasks feel like rocket science. Even when everything else is going perfectly in their life, this period of recalibration can push the strongest of women to the brink of their sanity. I was not the strongest of women to begin with. Menopause didn’t find me in slow degrees. It was deliberately induced, and descended on me like a siege. Menopause on its own is no walk in the park. Mine came instigated and intensified by cancer treatments. And layered on top of it, the compounding dimensions of Viral’s condition, its severity, and non-negotiable demands. On some days I am hard on myself, and darkly astonished by how I falter and fall short in so many ways. On others I step back far enough to see the full picture, and I am filled with a tender reverence for the journey we are on. I marvel at who I am being, and becoming through it all.

*

Because I often write in this time as a way of working through internal storms, when I look back at what I’ve written it can seem like life has been a long stretch of rough weather. But the truth is that while the storms are serious, they are also the exception. Most days, most moments, are radiant with a light that is more luminous than I’ve ever known. These days are holy. These seasons, a pilgrimage. Viral, who in some ways has never been farther from his usual mode of being, has paradoxically never been more himself. He is working through patterns and tendencies that he came here to transform. In this time he has had the opportunity to work with states like sadness, anxiety, and agitation that were rare to non-existent for him before. And as I watch him navigate these new waves, I have found myself trying to hold up a mirror– so he can see what lies beneath them. I have lost count of the times that he has been on the verge of tears, and I have asked him gently, “Who’s crying?” only to have him break into a big smile. The currents of emotion never sweep him out to sea for long. They move through him, and he is back in his center again. He does not resist reality. This was always his greatest strength. And still is.

*

I would not have imagined that AI would be such a godsend to us. I dive deep into researching various tools and platforms. It occurs to me that our systems need better systems, and that there are lots of options available now that make it possible to externalize the storage system of the mind. I want Viral to have more access, agency and autonomy. Part of this desire is deeply selfless, and part of it very selfish. I have to keep reminding myself that there is a difference between wanting him to get better in service of his own deepest potential, and wanting him to get better so that I don’t have to change. Within the intensity of everything we are growing through, the vast gains he has made, the enormity of the ground we have covered, is sometimes lost. He is able to encode more and more. It takes work, takes practice, takes time — but with the right supports and systems and reinforcements in place, he has been able to hold different threads of experience across time. The key content of conversations, the highlights of various events and interactions through the day that used to evaporate from his consciousness are now increasingly retrievable with the help of reminders, hints, online tools, and various memory exercises. He is stepping into more responsibility on multiple fronts, he is taking care of me in deep ways. We have spent quality time discussing his deepest aspiration, and the concrete goals that align with it, we have arrived at a set of practices and systems that can support him in moving towards those goals with more spaciousness, even playfulness. The resources we need are finding us in many different guises. We are experimenting and learning and loving every step of the way. 

*

In early September Viral quietly said something to me that I wasn’t quite ready to unpack at the time. “This is what it means,” he said, in response to one of my tearful outbursts, “This is what it means to be the love of each others’ lifetimes. It means we have to go through all these permutations and combinations. We can’t expect it to be any other way.” I am realizing now how I had somewhat ridiculously assumed that “lifetimes” would always mean more of the sweet same old same old. I, who struggled long and mightily with stepping into the role of teacher, counselor, parent alongside that of caregiver, am slowly starting to experience the exquisite, peculiar, transcendent opportunities of this time. I am realizing that I can simply do the thing that is mine to do in each moment, and let go of needing to control anything. I can show up with joy, presence, love and trust. I can relax. There is a deeper, higher intelligence at play, and there always has been. It will show us the way forward through Viral’s healing and mine. I don’t have to rush it. I can navigate the edges of insecurity and my fears with lightness. I can let go of any traces of victimhood– I can let so many outlived stories fly from me, like homing pigeons returning to the great Beyond where they belong. I trust Viral. I trust myself. I trust our love. I trust life.

I will still lose it at times. And that’s perfectly alright.

*

Now we are back to Andavan Picchai again…

“He [Lord Muruga] took permanent residence inside my heart and his presence was felt whether I was awake or asleep. It is so from the time he entered my being in 1908 till this day, the Lord guarding me like the eyelids protecting the eyeball. He has shown me that he exists in all forms, that he is present in all names, and that he alone appears as father and mother, as uncle and aunt, as lover and the beloved, and as children and relations. He bestowed the vision of his divine presence in all his creatures and showed the way to serve them all with love and affection. I found the one Supreme reflected as many, like the one sun reflected as many in the waves of the ocean. My mind became calm and undisturbed, reflecting the Lord’s presence, as the placid lake reflecting the full moon.” — Andavan Picchai

When I read these words, they calmed me down to the depths of my being. So much of my struggle has been around resisting the multiplicity of roles I’ve been asked to inhabit in this time. I loved my old singular one so much. But this time is an expansion, it is even, dare I say it, an upgrade. And it, like everything else, is transient.

Right now Viral is teaching me what I most need to learn. We are dancing together, as soulmates, taking turns with each whirl, sometimes we are husband and wife, sometimes we are brother and sister, sometimes student and teacher, sometimes we are beloved strangers. And sometimes, my heart, my unruly heart, is being taught to love like a mother.

There is no greater gift.


Angels Unaware

“Be not forgetful to entertain strangers: for thereby some have entertained angels unawares.” Hebrews 13:1-3 King James Version

Sometimes it happens like this: you are doing something you’ve done a thousand times before. Something mundane– and let me digress here, because mundane traces its roots to mundus, Latin for world. The mundane being that which relates to this earthly world, as opposed to a heavenly one. And what I want to say is this — sometimes it is easy to tell the difference, and sometimes it isn’t. 

Sometimes it happens like this: you are doing something you’ve done a thousand times before, something mundane, with your mind on something, and somewhere, else. Then someone you’ve never met before, and will likely never meet again, steps into your life. And something happens during that serendipitous encounter that spins your world around, causing its varied and colorful parts to fall into place with such perfect and kaleidoscopic beauty that days later you are still thinking of it, and her, and thrumming with laughter and grateful wonder.

In my case it began like this: I was shopping at Trader Joe’s, thinking of what to make for lunch, and how late it was getting, when a black woman wearing a blue mask, a white baseball cap and a white button up coat stopped me and said with the air of someone delivering a critical piece of information, “That there makes the best hot chocolate in the world!” She pointed helpfully to the cocoa in question.  I smiled, “It’s the season for hot chocolate!” I said. “Oh, I have myself a cup of hot chocolate at every single night of the year,” she said, “I’m 79 years old and a chef. I’m on my feet so much it just about kills me, so at the end of the day, I fix myself a bubble bath and a cup of hot chocolate and it sets me right again.” 

I had been in a hurry, but suddenly I am not any more. Something about this woman, (who is now pointing to the all purpose baking flour and saying, “That’s the best baking flour,” and then at the powdered sugar, “That’s the best sugar!,) has slowed my steps. I can feel something underneath and beyond her words reaching out to me. And something inside me wants to receive the sweet strangeness of what she is offering. And if you think you know where this story is headed, let me assure you – you do not. Stay with it, and it will surprise you like it surprised me.

“What kind of bubble bath?” I ask her. “Ohhh Lavender,” she says, “From that place you know, that has the buy-three-get-three-for-free deal. It’s the best, and I tell you, those bubbles they go up the yin yang! Now, what are you cooking for Christmas?” I laugh at the non-sequitur and confess I haven’t thought that far ahead. “I’ve got twelve grandkids and twenty-four great grandkids,” she says, “I’m always planning ahead! I don’t ever shop right before Christmas– no sir! Too many people– you set foot in the store and I don’t care who you are, it sets your heart racing and just about sends you into a panic attack. Not for me! I shop ahead.” She stops and looks me up and down, “Are you in the medical field?” “No,” I say, and then, rather impulsively, “I’m just finishing treatment” Her eyes sharpen, “What for?” So I tell her. She takes a deep breath and looks directly at me, “I’ve had 10 surgeries for cancer, starting from when I was 9 years old.  My neck and face, then my colon twice, then breast cancer after. I’m not supposed to be here, they told me I was done. But here I am. Ohhh I knew I was supposed to be here today!” and as she says this she shuffles her feet around, shaking them out, doing a little dance as she speaks.

“I’ve got all this energy running through me right now!” she says, “Got to get it out. God works in mysterious ways. Now listen, you’ve got to eat fresh vegetables and fruits. Squeeze some lemon onto your greens. No meat. I used to eat fried chicken and ribs every day, that’s what I grew up on. We’re not meant to eat like that. The people around me, they put on a hundred pounds a year, and then they got strokes and died. I got up and changed my life at 29. Juiced and fasted — do you know Gandhi?” I said, yes, we knew Gandhi. “Well I did 40 day fasts like that. Just water. And I could feel myself outside my body, I could feel my spirit. And, well it took a few years but I got all cleaned up inside. What do you eat? Let me see your cart. Whoa — that looks real good! You’re vegetarian? Hmm. Why did you get cancer?” “I don’t know,” I tell her.  “But it certainly didn’t feel like an accident — my husband had a bone marrow transplant and multiple brain infections the same year. He’s still recovering from the short term memory loss. Feels like there’s something we are both meant to learn through all this.” She is shuffling around again, snapping her fingers as she does so. Viral is standing a little ways from us watching quietly. Somehow I don’t feel any of the self-consciousness or hesitation I might usually have in the face of such an unusual interaction. I have no concern, or even any thoughts about what people around us might be thinking. 

“What is your name,” I ask. “They call me Nanny Granny,” she says, (oh, perfect name!)”And to think, I was so upset about needing to come here today! I came for a dentist appointment across the way. I had to fix a broken tooth yesterday and when I went in they said, ‘Nanny Granny we need to fix up and clean your dentures, and it’s going to take awhile. Come back tomorrow.’ Well I just about threw a fit.” Her eyes are twinkling over her mask at me, “I don’t have an anger management problem, no sir– I have a rage problem, and I said, ‘Look here y’all I ain’t going around without my teeth!’ and they said to me, ‘Nanny Granny just throw a mask on!’ and they gave me a mask. So here I am with my mask, and you’ve got a mask and your husband too! Look at us! I don’t even need to shop here today, but when I get the message I don’t play, so I came in grumbling. And when I saw you, I felt your spirit just caught hold of me, and I knew I was supposed to be here. Tell me your names now.” She pulls out a binder, and writes both of our names down. “Can I pray for you both right now?” I want to hug her. This energetic, and unexpected grandmotherly figure who has burst into my consciousness like a quirky character in a gentle dream. “Yes,” I say. “Well I just hope they don’t go and call the po-lice now,” she says, “I can get real excited when I pray. I’m just saying, my energy goes waay up!” 

It strikes me that I should maybe be a bit alarmed at this point, but I’m too charmed by my new friend. She speaks a short and lovely prayer, calling for blessings, from the crown of the head to the tip of the toes. “You’ve both got work to do,” she says emphatically, “You’ve got a lot to give, I’m not playing around here. Move aside now and let that lady get her chocolate.” We are still standing by the hot chocolate shelves as other shoppers stream by us. Viral is now standing by my side.  She looks at him, “You’re healing,” she tells him, “You’ve just got to laugh more. Perk up! I laugh for hours every day– it’s good for the body and the soul. Put your hands like this now, both of you.” She cups her hands over her lower belly, “Now laugh– ha ha ha ha!” We oblige, and it’s hard not to crack up at the utter unexpectedness and corniness of it all. “Do that every day. I’m telling you, it’s medicine. Ohh a prayer for that man’s leg now, a prayer for his leg.” A man is walking by us, his left leg in a cast. And it strikes me that Nanny Granny is tracking so much more than it might seem on the surface. Viral’s eyes are smiling and Nanny Granny is dancing and snapping her fingers again, “Okay, okay, calm down Nanny Granny, calm down,” she says, “Okay, now is it alright if I give you a blessing?” “Of course,” I say, because far be it from me to refuse blessings. “Okay, now they tell me not to carry this around, but I’m going to do what I’m going to do. No playing around, put out your hand now, ” she says to Viral. And I find myself thinking suddenly of the little heart pins that we have given to so many different people on the journey of this year, I wonder if Nanny Granny carries similar tokens of love to share as blessings. Viral extends his hand. We watch as Nanny Granny pulls a crisp one hundred dollar bill out of her pocket, and places it into his palm. 

My jaw drops and my eyes fill with tears. I am shaking my head no. This is too much. The grace of it, the grace of her strikes like a blow, shattering — what? My doubt, my fears, my sense of loss…In those moments I feel the world within this apparent world  asserting itself, speaking my name, melting me inside. “Oh — don’t you give me that look now. No, no, no. Put out your hand. You have to listen to Nanny Granny. This isn’t from me.” She is looking at me sternly, what is there to do but put out my hand? We’re still in Trader Joe’s but why do I suddenly feel like I’m back in one of the lamplit shrines of my childhood, putting my hand out for the spoon of holy water, the shred of tulsi. In my palm too is pressed a one hundred dollar bill.

“Now listen, you think this is from me? It’s not from me,” she says emphatically, “I was sitting in front of the library and praying and this man comes up to me, and says he was walking around the corner when he got a message to pull ten one hundred dollar bills from the ATM, and go give it to the woman sitting outside the library right now. So he did. I can’t make this stuff up. That’s how things go down when you’re listening. And when you get those kinds of messages you’ve got to follow through. When you need money, what do you give? Money. When you need prayers, what do you give? Prayers. When you need health, what do you give? You give health. Don’t play around. All you need to do every day is wake up and ask, ‘Where can I be a blessing?’ And you get shown. You always get shown.”

“Nanny Granny, what can we do for you?” I need to know what we can offer this stranger who is dancing through the world with such empty fullness. “What can you do for me?” Her eyes sparkle at me, “I tell you what you can do, every day you can pray to Jesus, and all you need to say is this: ‘Dear Jesus, today please, please just make sure Nanny Granny acts right.'” I give a surprised laugh, deeply touched and simultaneously deeply tickled by her response. “I’m not playing!” says Nanny Granny, “I need that prayer! You got me?” I nod my head, dumbstruck by really, all of it. And with that Nanny Granny does a final little dance, and takes off around the corner to inspect the frozen ice cream aisle. And I have to shake myself a little, as though rousing myself from a dream. Trying to fathom what just happened, and finding myself more than a little out of my depth. When I try to find her a few minutes later, to give her a bouquet of flowers — she’s gone.

The compass needle is spinning and I’ve deliciously lost my sense of direction. I’m left with the dizzying sense of having been brushed by the wings of an angel. It occurs to me that I’ve spontaneously given away several hundred dollar bills in my life. But, I’m realizing now, it’s always been to someone whom it could be assumed, ‘needed’ the money. In that sense it has never been truly spontaneous. What Nanny Granny did was done with all the effortlessness of a ripe fig splitting open as it falls from its tree branch. With all the unpremeditated naturalness of a wave washing up on shore then returning to its depths, withholding nothing.  

What I’m left with is a fistful of pearls. 

***

In this time of holy days, to wake up each day and ask where I can be a blessing. To ask too for the blessing– to act right. To wish all manner of goodness on the angels who tread amongst us. May their tribe increase. Their spirits so rambunctious, their prayers ever un-reined, and so raucous that unwitting neighbors consider calling the cops. 


Of Memory, Time & Breath,

“The answer to the question of time, the soul’s answer to the question of time, is not anything in words or ideas. Time is incomprehensible to the mind that asks about it, our mind. The soul’s answer to the problem of time is the experience of timeless being. There is no other answer.

— Jacob Needleman, “Time and the Soul”

Flashback:

Day 51

We are sitting on the sofa in his hospital room together. I have a cup of coffee and am sipping slowly. “How is the coffee here?” he asks me. “Nowhere near as good as yours, but by hospital standards, it passes muster.” He smiles. “Are you up for some conversation?” “Would love it,” he says.

Pavi: Are you looking forward to us going home eventually, or is that not something that comes up for you?

Viral: I haven’t really had much time to think about it, but walking around with the limitations here you realize— it’s not the most expressed of lives, to be living within the box…. [he pauses] Is it going to be awkward for you to play a producer role in this?

[In the early stages of treatment for his brain infections, Viral sometimes operates under intriguing premises that are not fully rooted in this reality, but that are not fully disconnected from it either. One frequent assumption he makes, is that we are on a film set. He recognizes we are in a hospital, but assumes we are here as part of an elaborate, scripted production that is serving a greater purpose.

Looked at from his perspective, this is an entirely plausible explanation for the implausible circumstances he finds himself in. A reality where day and night have no boundaries, where norms of privacy are a thing of the past, where his body is routinely poked and prodded, confined to a strange bed, its movements restricted by a jungle of tubes and wires. High-pitched alarms and beeps punctuate the soundscape, but no one appears deeply perturbed. Assorted characters in varied uniforms bustle in and out of his room without waiting for permission, asking questions that range from the banal to the bizarre. This is all just at baseline. Life in the hospital, post-BMT treatment, even without any complications, follows a profoundly fragmented rhythm. Toss four severe infections, including two of the brain, and short term memory loss into the mix, and the disconnected nature of that reality is exacerbated many fold.

In this state, the brain can no longer seamlessly supply a continuous storyline in the ways that it is used to doing. It must draw its own conclusions from a smattering of disparate scenes. Two things stand out to me in this time. They put a lump in my throat, and they fill me with an awe so sharp, it lacerates my heart. First, the awareness that at this point, at a level pre-cognition, it’s not Viral’s conscious mind that is analyzing and choosing interpretations. The patterns he’s built up over a lifetime are choosing for him. And Viral being Viral, the conclusions he is drawing from the felt-sensations of his current reality– a reality that is physically intense, and rendered in a jumble of disparate snapshots — are not fearful or self-oriented. They are benevolent, interesting, and rooted in a fundamental sense of love and interconnection. In his mind, he is a willing actor in a meaningful project, not a victim of frightening circumstances. And he is not trying to direct the process, or even negotiate a cut to a more comfortable scene. And second: I have a pervasive sense that in Viral’s disorientation, he is, in a strange and powerful way, revealing the truth of memory being at least in part, a medium of agreed upon fiction, much more than it is the domain of objective fact. He is pointing with a kind of purity, to the storylines we live in, the scripts we unconsciously create and unconsciously follow, while assuming we are living free lives. He is surfacing the irony of how we make an intricate movie set of this marvelous world, and dub it Reality.]

Viral: Is it going to be awkward for you to play a producer role in this?

Pavi: What do you mean?

Viral: If we are doing this project, and I’m at the center of it, is it awkward for you to be the intermediary?

Pavi: [By “this project,” he is referring to the film he thinks we are in,] Any role that keeps me at your side – sign me up!

Viral: You’re so sweet. [I am many things and only sometimes sweet, but if I had to take a guess, I’d say this is his response to 95% of what I say to him :)]

Pavi: How are you feeling this morning?

Viral: Clearer and actually rooted in my body in a fundamental way. Grateful to have the rooting of our connection – yours and mine in particular. And grateful to hear about familiar deep relationships, still being a part of the overarching landscapes, the recognizability of those foundational forces within wherever the new narrative is. 

Pavi: What is the new narrative?

Viral: I don’t know yet. 

Pavi: Are you looking for one?

Viral: No I just get the sense that I’ve missed a bunch of time and perspectives, and so am just assuming that I’m going to see partial angles– which is of course true no matter what. 

Pavi: Do you have a sense of why you missed a bunch of time?

Viral: It’s a strictly biological or psychosomatic experience– it seems like I needed the space or needed to create the space to — I don’t know exactly what — to heal or ground in multiple perspectives or just adapt to a new reality that I don’t have all the full details of –it’s almost like I’ve missed some time and need to adapt to that. 

Pavi: You had a BMT at Stanford almost two months ago. Engraftment happened, but before that a few infections set in, and two of them were in the brain and caused inflammation. This caused some memory loss, particularly short term memory. You are being treated with very potent and very targeted medications that in the short term create a sense of offness because of the side effects, but there have been remarkable improvements in your state of well-being and particularly in your physical capacities and also your clarity. You’re doing really well, even though it may not feel like it to you since you are maybe comparing with your old normal. But they are expecting a very robust recovery of your whole system given enough time and so am I. Of course we can’t know for sure because nothing is quite for sure in this–

Viral: Domain

Pavi: Yes. But there are strong signals and indications of recovery from all dimensions and levels–

Viral: The adventure continues.

Pavi: Yes! Does it feel daunting in any way to you?

Viral: Daunting is probably not the word I would use, but I think there’s an initial sense of an interesting and major challenge — a sense of like — this is what life IS. Another emerging set of explorations. Whether you know it, or invited them or not… though I guess some deep part of you knows, and did invite them. 

***

Day 52

The last couple of days have been hard. After a night of very little sleep and a low grade fever, Viral has several other concerning symptoms show up. I am watching him like a hawk. In his current state, even minor symptoms can have serious implications and must be taken seriously. The day quickly fills with medical investigations. Another MRI of the brain, another x-ray and CT scan of the chest, and a bundle of other blood, stool and urine tests in addition to the usual regimen of almost hourly infusions and pills. How tired and uncomplaining he is. Through all of it. How heart-wrenched and full of doubt I am. Through all of it.

His body has been subject to so much. The infections he is battling are severe. The treatments are life-saving, but far from benign. The results are ravaging. It wounds me to look at him sometimes. I see the small red dots and dark bruises on his body (the result of low platelets). I study the frailness of his arms and legs, the fragility of his wrists. The thinness of his face (how I love that face!), its once mobile features now so much less fluid, his smile (that sunlit smile!) constricted by facial muscles that cannot move with the same ease they used to. I see the light drained out of his once vibrant, now darkened skin. He has lost almost thirty pounds. His ankles and feet are uncomfortably swollen, tight with retained fluid. His shoes no longer fit, nor his sandals. His chest caves in a little. When he moves, he moves hesitantly with the help of the walker, his eyes dropping to the floor. “Shoulders back,” I tell him, as we walk together, “Remember to breathe. Eyes straight ahead, remember to look scan the horizon.” I need these reminders too. It is difficult to take deep breaths. Difficult to keep my gaze focused on the path ahead. I am given to the backward glance. Riddled with memories of our life together. Too haunted by the ghosts of a cherished past. I did not want my life to change in the ways that it has. On the surface I try to keep moving.

There is so much pain inside, and I do not feel it is the time to attend to it. Inside me a feeling that feels like a knowing. A knowing that Viral must be my focus in this time. I need to be at his side. The pain ignored, erupts on its own schedule. In private moments late at night, in the early hours of dawn, and once, at a rare acupuncturist appointment. A howling, ragged, primal release of tears. A grief that feels like it does not have a beginning or an end. And yet, even in the midst of that brokenness, I receive occasional glimpses. Of a strength stirring in the deeps. A power and fearlessness that I am, funnily enough, more than a little afraid of.

Where are we headed Viral? And who are we becoming?

Day 58

Every time the doctors come in I have a list ready. I pepper them with questions regarding the persistent fevers and about possible additions to the regimen to protect/address the potential of the inflammation being ill-controlled or aggravated. I ask if they have a pool of other experts/specialists they can tap to find out specific details about cases where there was successful resolution of inflammation/recovery of cognitive function/short term memory. There is a meeting on Monday where they will have access to more specialists and they will surface his case there. I ask about access to therapies while he is still in the hospital, I ask how we can ensure that he gets timely intervention. Sometimes I am direct to the point of sharpness with my inquiries. I have learned to prioritize clarity over politeness, and I ask the nurses afterwards to let me know if my questions are ever irrelevant or unhelpful. Each time they say the same thing, “If it was my husband, I’d be doing exactly the same thing.”

Invariably, if he is awake during these ‘energized’ interactions with the doctors, Viral intervenes with a quiet sweetness that makes me tear up and wonder all over again what his spirit is made of. While I’m trying to get answers and ensure closer monitoring and follow-up, he (even in his condition!) wants to make sure no one is offended or feels misunderstood. He jumps in to soften my pointedness with his appreciation. “We know you are on our team and you work at the edges where there are often no clear solutions. It takes bravery to work in that place and we appreciate all that you are doing, and the dedication that you have to helping us and others.” On one occasion he interrupts my interrogation by trying to convince me that the doctor I’m talking to is a volunteer. At that point even I have to laugh. “He’s trying to soften my approach,” I say to the doctor. She smiles, “It’s beautiful, ” she says, “You both just care so deeply for each other.” “And we care for the ecosystem,” adds my extraordinary husband

Oh Viral!

***

Viral first did the pen and ink outline for this painting, then asked me to help. I gave him the paintbox and asked him to choose colors for different sections of the painting. I said I would paint it for him. He started out choosing yellow for the heart and then green and brown for the club shaped protrusion on the upper right, then orange and black for the eye-shaped figure above the heart. I finished all of these areas sequentially and then he asked for the brush and filled in the little “foot” with orange and also painted the bottom layer — greenish blue/gray before asking me to fill in the rest with variations of the same color. He then chose red for the little cluster in the upper left corner. The next morning over coffee I showed him the painting again and asked him to title it. The spontaneity and succinctness of his response arrests me. I immediately sense a deep current of wisdom beneath the words, but it will take me much longer to truly register their meaning.

Title: Beyond Time & Force

Time is a type of force. There’s a presence that goes beyond the conditioning of time and of force. It’s what’s rooted in yourself vs what is rooted in projections of yourself.” ‘

***

Flashforward

Back in our own home, as autumn makes its way back on stage, we navigate the dizzying labyrinth where memory (and its loss), time, and self, suffering and salvation meet and mingle, I pick up Jacob Needleman’s Time and the Soul (gifted to Viral by a dear friend). I read it very slowly, over many weeks. And as I do so certain lines pounce off the page, like so many jungle cats. Felling me with their fierce grace. Gleaming gold with insight. Here are a few of them:

“The root of our modern problem with time is neither technological, sociological, economic nor psychological. It is metaphysical.”

“…All this remembering is only the work of a small part of the mind, mixing its accidental thoughts and feelings with scattered, random fragments of the past. We have never deeply remembered! We have never really gone back in time. We have never seen the roots of our being with the whole of our mind.”

“The personality is formed to protect us from metaphysical pain. And it does this very well. Too well.”

“In the false world, Time is our enemy, but we do not really know how powerful it is; we don’t really feel the deep, rolling, cruel power of the river of time, so busy are we managing the crisscrossing waves on the surface. But in the real world, there is a wind that comes from, “the center of the universe,” from the “beginning”– in the language of myth, “long ago,” “once upon a time,” a message and a messenger were sent to humankind. This messenger is always being sent.”

“How insane to believe we can grasp anything essential about time without opening the heart? …What could be more painful than to try to manipulate the greatest force in the universe– Time — with our nervous minds, our anxious hearts, our tortured bodies? Until we can let in what the masters of wisdom called, “the attention that comes from the source,” “the wind that rises from the center of the world,” or simply, “divine love,” we can no more deal with time than we can deal with volcanoes or earthquakes or the movement of the earth around the sun.”

“There are no tricks or techniques that can make us feel that we exist. And it is only at such levels of feeling– and far beyond such levels– that time begins to “breathe” in our life. Only with such feeling do we begin to breathe differently, literally and figuratively. According to the ancient wisdom, when a human being breathes differently, the passage of time takes on new properties. There is a new feeling of self that appears when a man, or woman, truly and genuinely steps back from himself, looks at himself and then…? And then: enters himself.

***

One day I close the book, and recall Viral’s painting. I pull it out, and revisit his words, they read as crystal clear, and as refreshing as spring water. I feel a softening and an opening within.

Time is a type of force. There’s a presence that goes beyond the conditioning of time and of force. It’s what’s rooted in yourself vs what is rooted in projections of yourself.” ‘

It is time to breathe differently.


Nineteen

11.13.2024

Our marriage is nineteen years old today. Were it a young person it would be away at college. Living in a dorm, drinking lots of coffee and acquiring a personal philosophy. Chances are it would love used bookstores, long walks and rainy Sundays. It would be old enough to marry, and old enough to vote, but not old enough to run for office (though chances are it would do a better job than some elected officials.) If on the other hand our marriage were a mourning dove, it would be improbable, far-fetched, a preternatural anomaly. For most mourning doves do not live into the double digits. In the long history of this planet, only one is known to have seen the dawn of his third decade. If our marriage were a mourning dove, it would be in perpetual mourning, because predators, disease, inclement weather and  humans with a predilection for hunting. But on its sleek wingtips would still be found a stutter of small black dots, like ink stains from a perverse fountain pen. It would still feast unobtrusively on seeds, and object to sudden disturbance with a signature whistling flutter. And every night, our marriage would fall asleep in a tree, feathers all fluffed up, head sunk sweetly between soft shoulders. And since we are considering hypotheticals here, let us consider another: if our marriage were starlight, it would originate from Gliese 229, that stellar trinity composed of one red and two brown dwarf stars, located in the constellation Lepus, nineteen light years away from our home and yours, invisible to the naked eye, but readily glimpsed through a telescope. To look at it is to look back in time. That shine you see? The start of something extraordinary.

*

Our marriage, assuming you care to know, happens to be at once, all and none of the above. A thing unto itself, unequalled and alive. Curious, fragile, mourning. And full of song. Watch as it croons through the darkness, addling time and bearing, such a wild light.

***

(From the archives)

11.13.2014

Our marriage is 9 years old today. Were it a child it would be in 4th grade now. Chances are it would have lost its front baby teeth, and have memorized the names of all the planets (minus Pluto, which got demoted). It will have been informed that our Earth circumambulates the sun, but will not yet have been introduced to trigonometry or taxes. If, on the other hand, our marriage were a medium-sized dog, it would be 56 human years old today. It will have acquired, after years of frenzied puppyhood, an air of gravitas. It will have lost some hearing and declared a truce with the squirrels. It will spend inordinate amounts of time asleep in golden swaths of sunlight wearing a smile. And now seeing that we are considering hypotheticals, here’s another: if our marriage were a sturdy oak somewhere on a windswept hillside, it would still be waiting quietly for its first acorns (yet a decade perhaps two away). But hidden deep in its heartwood, it will have already begun a stunning and concentric collection of rings.

*
Our marriage, assuming you care to know, happens to be at once all and none of the above. A thing unto itself, unfolding and alive. Teachable, warm-bodied, deep-rooted. Mortal. And somehow more — so much more — than I dared ever ask of this dazzling world.


Day 48: Opportunities of the Heart

Flashbacks from Viral’s hospitalization, from those tenuous days while he was being treated for meningitis and encephalitis alongside two other infections.

Day 48

Though I have hardly spent any time in it, the picturesque home we are renting not far from the hospital, is a home after my own heart. Full of art, light, comfy seating, garden views and bookshelves. So many bookshelves! And such a wonderfully eclectic assortment of books. The Phantom Tollbooth, and The Great Brain next to Ovid and Outliers. Amanda Gorman’s poetry collection, “Call Us What We Carry,” next to Chanel Miller’s, “Know My Name.” And on one shelf, this slim, nondescript book: “Creativity From Constraints: The Psychology of Breakthrough.” I often judge a book by its cover. This one is unspectacular. Breaking my pattern I pick it up anyways and put it in my bag to read at the hospital. Later, while Viral takes a daytime nap after a very interrupted night, I open it. This book, I soon realize, does not deeply interest me. But I am intrigued by its theme, and a few lines in early chapters…

“The more constrained the solutions path, the more variable, the more creative, the problem solvers.”

“Operators in well-structured problems with single correct solutions, like directions to memorize, calculate exactly or copy correctly, do the opposite of constraints for creativity. They preclude the surprising and promote the expected.”

“I like to think of constraints for creativity as barriers that lead to breakthroughs.”

I have written, in a very different context and time, about the power of self-imposed constraints and their relationship to breakthrough solutions. But right now that is of no consequence. It strikes me that I have never felt more constrained or less creative than I have felt this year. What we are in the middle of is a very ill-structured problem, and there are no easy or clear solutions. It occurs to me that I might well be missing an important boat here.

When Viral wakes up, I have some questions for him. As has become the norm of this time [in the early days of his treatment for multiple brain infections,] he picks up the thread wherever it’s handed to him. He does not hesitate before answering and there’s a degree of clarity and awareness in his responses that I find astonishing.

With chemo and other kinds of strong drugs there can be a dampening of life force at every level of one’s being. I know this first hand- for a time it extinguished any sense of vibrancy or enthusiasm I had. You’ve been on a far more punishing regimen for so long now. How do you navigate this?

What’s the creative response to more and more limitations? When there’s so much sweetness and support around, that inquiry becomes easier to imagine seeding and playing with. “I want to just try this” Even simple things like — the pros and cons of, “I just want to lie down” vs. “I want to kind of build off of where things are in conversation, just for the sake of exploration and satisfaction and value.”

[This is part of his gift — to attune to what he is receiving, even in the midst of extreme challenge. And to live creatively from that simple abundance.]

What do you feel the satisfaction comes from?

Something that has not been quite met yet, that finally gets met in anywhere ranging from a small to a big way. 

[“Something that has not been quite met yet, that finally gets met…” The poetic quality of his articulation in this time mesmerizes me. He is not speaking the way he normally speaks, and yet he has never sounded more himself.]

And where does the value come from? Is it from the experience itself or the learnings within it, or–?

Maybe it’s the juxtaposition of the two, the experience itself and then you have some fresh inclusion. 

[“Some fresh inclusion.” How I love that way of describing learning. A newness that we take into ourselves.]

I don’t want to romanticize any of this — what you are engaging with in terms of the memory loss is hard and it’s gritty. Like being lost in the wilderness.

Even this whole thing of– in this moment what am I doing? And what was the conversation about? [Those gaps] can be jarring, or it can be like being shaken up in a good way. In a fresh way. 

How do you find yourself orienting within the wilderness experience of it all?

There’s just a lot of trust and a lot of immersion.

What do you mean by immersion?

In a way the best choice is to immerse. It’s not the only choice, I mean you could play it differently. 

How do you immerse? Is it a non-resistance? 

That may be the best way to put it — but I think there’s also the creative act as well that’s possible, it may feel appropriate to explore it from that angle.  You don’t necessarily have to squeeze in.

[I love how he has just framed this. You don’t have to passively fit yourself into reality like it’s a box with a fixed frame. You can enter and act on it in mutually creative ways.]

Like — what could be mine to do here?

Yeah, yeah.

Almost like you’re the artist but you’re also the canvas?

That’s a brilliant way to put it. 

***

‘In art, truth and reality begin when one no longer understands what one is doing or what one knows, and when there remains an energy that is all the stronger for being constrained, controlled and compressed​.”- Henri Matisse

Matisse would know about creative constraints. Complications after surgery for cancer nearly claimed his life, left him bedridden for months and eventually confined him to a wheelchair. In this time he developed his distinctive cut outs technique, a style of collage making that he called, “painting with scissors.” The whimsical pieces he created in this style are among the most admired and influential works of his entire career.

With Viral, in the hospital during the daze of these days I see some parallels. He no longer knows the things he used to know in the same way he used to know them. And there is an energy in him that is “all the stronger for being constrained.” It burns in his eyes, I can feel it under my fingertips when I touch him. I hear it in the quality of his words when he answers certain questions. In conversation he is making cut-outs of his own in this time. And to me, they are distinctive and invisible works of art.

He is also continuing to make actual art. Simply, unselfconsciously and with no pre-meditation. The themes and his unpacking of them make me wonder what his deeper experience of this time is. It feels like he is in rich contact with something beneath the surface reality of this intensive hospital stay.

What does this painting evoke for you?

Viral: Opportunities of the heart: even where things are blank or unclear there is the gift of being able to see through the opportunity frame of the heart . Blockages of love: there is some paradox to that. One simple thing is there is no blockage of love when love is at the center of things. Versus, when it’s not, things have different flows. It seems like maybe there are times when there’s a deeper inspiration underneath that is ready to flow into the space of love, but you just miss the window. Then it’s like, “Okay I might have missed some window — but now I’m onto my next window and it may look different.” An opportunity of the heart is something that is going to open up your heart in a different or richer way, for yourself and for other people. I think the potential is there for anyone at any time. The only question is, are the conditions there for you to genuinely connect to the potential. Try and experiment a little bit and see what kind of nourishment comes from that. And it may not be there, which is fine. Opportunities of the heart and blockages of love — they both exist on the stream of awareness, and you want to be aware of both. And overarching it all is the connection to principles. 

What does this piece that you just created, bring up for you?

There are all these interplays going on constantly. And with certain kinds of presence and the eyes to see, some greater order reveals itself in a way that adds meaning. Expectedly or unexpectedly. Though always more “interconnectedly” than generally would have been clear or apparent. Our holding capacity, our volume as individuals is less than the power of the exponential. When interconnected forces can be together, there is that kind of power magnification.

***

What would you like me to write about next?

[He strokes my cheek gently] “Write what comes to your heart you beauty-pie.”

I have no hair, no eyebrows and no eyelashes right now– I’m hardly a beauty-pie.

But those chocolate brown eyes are still the same.

How do you always know how to make me feel better?

I don’t know that I always do. But I see your goodness and it’s reflected in my goodness. 


Day 147: Home Again

Evolution:

We are survivors of immeasurable events

Flung upon some far reach of land

Small, wet miracles without instructions,

Only the imperative of change.

-Rebecca Elson

Almost exactly one month ago, after a long series of immeasurable events, Viral and I moved back into our sweet home in Belmont. For the first time since the beginning of the year, it’s just the two of us in this little bird’s nest of a house. And I can say now, what I couldn’t say with conviction for a long while: We are doing well. We are continuing, day by day, to heal. It took an army of angels to get us here. You, reading this are likely one among them. Invisible forces hold the stars and our lives in place. Through silence and across vast distances we know we have been held by so much more than we can fathom. Thank You. For all of it.

In the two and half months since his discharge, Viral has been steadily getting stronger every week.His short term memory, while still affected, is responding beautifully to therapeutic interventions and the healing passage of time. His last bone marrow biopsy in August showed no indication of MDS, and he has been transfusion independent since early July. Those seeing him now cannot believe how well he looks and sounds. How simultaneously unchanged, and also transformed he is. On my end, after completing chemo, two surgeries, and starting on hormone blockers (that I will take daily for the next five years), I’m now a third of the way through radiation treatment, with Viral as my charioteer. Each morning when I look at him and consider how far we’ve come, it seems nothing short of a miracle.

Getting to this point has not been easy. Witnessing what Viral endured over the course of his hospitalization brought me to my knees day after day. In the face of the precipice we were teetering on, my own cancer journey, symptoms and side effects faded to little more than a side note. In the underground tunnel of that time, nothing mattered more to me than being by Viral’s side, trying to tune into every dimension of his treatment process, trying to find the levers to bring him ease, ensure his best chance of recovery, and honor his deepest aspirations. It was also a time of being chased by my own demons and doubts. Of being riddled by my fears, and freighted with choked-back grief. I sat down to write this update dozens of times, only to find myself immobilized, and unable. It was all too close, too stark, too shrouded by strong and wordless emotions, and far too little sleep. Looking back at that stretch of the road, I still find myself to a large degree, dumbstruck.

But I do want to say this: the kindness, quiet heroism, and humanity of the hands- the hands of family, of friends, and of strangers– that served Viral and I in this time will forever hold my heart in a colossal debt of gratitude.

After two and a half months in the hospital, Viral was discharged on July 15th. At the time he could walk with support, but was still on heavy duty IV medications [that I learned, with great trepidation, how to administer through his PICC line.] He was barely able to eat, was hardly sleeping, had trouble remembering the year, where we were, and what exactly was going on. His short term memory was still profoundly impacted, but his sense of gratitude and his trust in the ultimate laws of the universe were unshaken. He moved into the spacious multi-level home we had rented in Portola Valley and began the difficult work of navigating daily life in the wake of a bone marrow transplant, four serious infections, and the loss of working memory.

One week later, after more than seven months of selflessly accompanying us through the multi-dimensioned intensity of Viral’s hospitalization and my chemotherapy treatments, Nipun and Guri transitioned back to the many other demands of their lives. The baton was gracefully passed to my sister Deepa, her husband Ramesh, and our seven-year-old niece Dhira (the other love of my life.) This healing trio, who flew in from India to be with us, could not have landed at a better time. Their unassuming competence, care and closeness worked a slow and quiet magic on my ragged spirit.

Two weeks after Viral’s discharge, I underwent a double mastectomy. The next morning, upon waking Viral began walking towards me, stopped part-way and then fell backwards all the way to the ground. It was a miracle that he was not injured. But we found ourselves back at the Stanford clinic multiple times that day, and almost every day of that week, and the next and the next. I remember those initial days as a daze of love and pain, laughter and tears, fierce fragility and fiery strength. Like the period of hospitalization had been, these early weeks after discharge were full of profound paradox. Full and empty. Surrounded and solitary. Poignant and playful (as life under the same roof as a precocious seven-year-old is wont to be). Then in mid-August I learned that the margins of the removed tissue were not clear, the very next day I went under the knife again. And something shifted indescribably. In that liminal state between sedation and waking, I found myself chanting. Bowing to the divinity that takes such dazzling and destructive forms, that dances in each atom and embeds a marvelous music even in the heart of the mundane, and the seemingly monstrous. I felt in those moments, fearless and grateful, and willing to go on this divinely dark, and (by definition,) ambiguous adventure.

In the four weeks that we have been flying solo back in our own home, Viral has contracted two more infections and has had to navigate among other symptoms and side effects full body rashes, neuropathy in his feet and a sensitivity to sunlight. During the first year after a bone marrow transplant when all immunizations have been wiped out, and as immunosuppressants are tapered, the risk of opportunistic infections and GVHD flareups come with the territory. Patients and their caregivers must learn to be vigilant without being hyper-vigilant. Disciplined without being obsessive. Cautious without being fearful. Dancing on the right side of those lines while we were both in treatment, and with the added complexity of Viral’s short term memory loss has been challenging and, as Viral would say, evolutionary.

While he has been at his most tender, vulnerable and receptive edge, I’ve found myself needing to be more practical, organized, clear and calm than I’ve ever been. In some ways we have found ourselves switching places. And now we are learning how to dance in our new shoes, leaning into what this phase of the journey demands of both of us. And as always he is the more graceful and gentle one. Even in his most debilitated state in the hospital, even at the height of the brain infections that turned his world (and mine) upside down, he was always the one person I knew who could understand, at the deepest level, what we were going through. Even when he didn’t know what decade it was, or what continent we were on, even when his seeming lostness deepened mine, he was always my compass and guide. Walking this labyrinth with him feels like the privilege of many lifetimes.

Here are a few windows into his state of mind and heart during those fevered, other worldly weeks in the hospital…

Does it take a lot of energy to have to reorient yourself so often, given the gaps in your memory?

Viral: For me it’s not energy to reorient — that’s not the manifestation, as much as knowing I see a partial picture in this moment. When you think about it, that is always the case but there is a sort of a threshold up to which you don’t feel comfortable with the gap in the information that you have and beyond which you feel comfortable enough to figure out the rest of the gaps. For me right now, it’s not that severe. It’s like a door in the night — you can barely see the outlines of a door, and you don’t quite know what’s behind the door. There are some assumptions that there could be something valuable behind the door, but maybe also some concerns around, how do you really know whether the door is really worth opening?

Have you felt despondency or dejection in this period?

I think versions of it in terms of tiredness, intimidation and just feeling like “whew” and also just questions about resourcedness. In the field of different types of experiences these things are there in the field. Generally there is a lot of resourcing and so I don’t feel spun around in it, and it’s made me think what creates those circumstances. I don’t know. But you can imagine how it would be without that anti-spin force that is also at play. So the spin tendency will come in — fear, uncertainty, disconnection- whatever it might be but there is also this strong counter force — counterforce may not be the right word — the presence of another force and it is somewhat mysterious how the insertion  of that other side of the coin or whatever, becoming aware of that, it lets you see differently.

How would you describe this time?

First of all, it feels like waking up out of a long and deep sleep. But also, it’s iterative, it’s not complete, and it keeps happening in a way. What feels constant in this process is presence and love. And by presence it’s kind of like, something so familiar you can’t be confused that it’s anything but your honest truth of being. And love is an honoring of the intensely interconnected and interrelated reality of an increasingly evolved community. And it’s not just community– there’s a deeper point there about the inner and the outer. It’s not just about community manifesting outside it’s about realizing that sense of community inside. 

What’s your feeling state right now?

Relatively peaceful. Little tired. Kind of taking in new information, trying to connect some new dots without getting fixated on connecting too many dots with limited information. Trusting in you and the context to reveal itself as these moments go by.

How do we work through this time, you and I, given all the challenges?

This is a long path and we can’t get too paranoid about it. We have to work with what’s in front of us in each moment. Know that we’re not seeing the full picture and that we’ll never actually see the full picture and that’s okay. To just fully act and to fully be with sincerity and compassion. Your evolutionary journey will continue. You’ve got so much love in your heart to offer and you keep offering it, and that’s part of your path. I believe we control the pace of the evolutionary journey. The universe is kind that way. 

You are my partner in all adventures and all paths, and I think it’s safe to say this is not the first or the last path we will be traversing. We just do it with a sense of togetherness and sincerity and love. The circumstances will keep evolving. There will be seamless times and challenging times and all we want to do is keep growing and loving through it all together. The question is going to be, how do we smile through it? How do we connect through it? How do we grow through it, work through it and love through it, with interconnectivity with others, and with humility, gratefulness, and courage?


Day 44-47: The World of Possibility

We are counting our blessings, and in this time I am counting so many things that a few short weeks ago I wouldn’t have known to include. Viral is walking without a walker. He is able to stand at the sink to brush his teeth. He can take a shower, sit on the sofa. He can bring a cup to his lips without shaking.

The doctors and nurses are well-pleased with Viral’s swift progress. We’re relieved he is no longer in acute pain. There is a sweetness to this time. Though there are still many unknowns, much complexity to navigate, and still much ground to be covered before we can consider a discharge date, there is too, a quiet sense that he is held. That we are held.

Above is a diagram created as a quick way of orienting Viral (and myself) to what has happened, and what is happening in this time. He was having to re-adjust multiple times a day to suddenly finding out he is at Stanford, post-BMT, navigating a host of debilitating infections. At some point we were getting lost in the thicket of complex treatment details that his memory has temporarily lost access to. And it was draining his energy. Every time the teams of well-meaning specialists burst into the room with their routine questions and jarring updates (peppered with the intimidating names of multiple drugs, advanced tests, and disease details,) we’d watch Viral valiantly marshal his limited physical resources, and his remarkable internal ones, to try and integrate and respond to everything they were sharing. It would unsettle him in subtle ways, not to be able to do this, and each time he would be left trying to sort out all the missing pieces.

It struck me over and over again, how his focus in all of this was on trying to support whoever came into the room. He wanted to be in meaningful connection. He wasn’t overly interested in, or concerned with his experience as a patient. Something in him deeply trusted that part was taken care of. The frame that he was most alive to was that of being a collaborator in a shared process. I wanted a way of reflecting that back to him. So I tried to create a high-level, simple, pictorial summary of his/our journey that he could resonate with and build off of. I’m not an artist, but I figured he’d give me points for effort 🙂 When I showed him the diagram, I narrated the flow of it for him in words:

“In May of 2024 you were admitted to Stanford hospital, a few days later we were thrilled to have you go through a bone marrow transplant. Every BMT comes with unexpected twists and turns. In your case you came down with intense fevers and a few infections. The medical team here was able to diagnose and start you on the right treatment. You’re responding to it beautifully, and the infections are getting better. Now we’re in June, and you’re in the “Building strength” phase. You’re getting stronger every day, step by step, and we’re all healing together. The heart in that circle, with you, Nipun, Guri and me, represents everyone whom we are connected to both in visible and invisible ways. There’s a multidirectional dance of offering and receiving and healing that’s happening. And through it we flow to the edge of discovery together. We each have our own mountain to climb, and we do it each in our own ways, but we are all connected at the base. And we flow into the wider world with our learnings, our light and love. And the cycle continues as we continue to build strength, step by step, and dance and flow and lean into the edge of discovery again and again. Because of the intensity of the infections and the inflammation that happened in the brain, some of your memory is temporarily offline and you don’t always remember being admitted here, or that you had the transplant. But those details aren’t deeply important at this time, they’ll get clearer eventually. We’re in this new phase now and we need you do to exactly what you’re doing– you’re building strength and being a core part of this deep, collective process we’re in.”

“I love it,” Viral said, “This is amazing.” He says that every time he sees the drawing. And I bring it out multiple times a day. Some of the doctors and nurses have been subjected to it too 🙂 As rudimentary and unrefined as it is, it approximates some of what really matters to Viral, and where he innately sees value. As we wait for his short-term memory to re-emerge as the doctors have assured us it will, this little scribble allows us to ignore the threads that tie us in knots, and instead pick up the ones that he/we are drawn to explore in this uniquely potent time.

***

There is something beguiling and out of the ordinary, about our current conversations with Viral. It feels at times as if he has arrived back in our midst from somewhere at once faraway and unutterably near. A place that cannot be named or visited like a country. A place that cannot be described except in koans and codes. Below are nuggets from sundry conversations Guri, I and other dear ones have had with him over these past few days. Like all excerpts, they are by definition incomplete, and missing the contextualizing frame of the surrounding dialog. And while I try to transcribe as faithfully as possible, these efforts aren’t perfect. My apologies in advance to you dear reader, for any ways in which this muddles or distorts Viral’s meaning. [I know in advance that he himself, gracious as he is, will forgive this without a second thought.]

How are you feeling right now? There’s a freshness in terms of aliveness. You’re not fully arrived and you’re not fully departed. And then there’s the practical aspects– it’s been unclear what is coming up next in terms of different injuries that have happened… And on the flip side there’s all the glory of livingness, that’s alive and possible and experiential. And then there’s the collective living of that, whatever the collective in that moment means. That has been beautiful as well. So it’s like okay– you want to live your life with authenticity, joy, and a sense of aliveness, and if you do that then everything else is details in terms of how it shows up.

What is the value of being in the present moment? I think fundamentally for me it’s ultimately about where your attention is genuinely called, and what does it mean for it to be called. If you really are alive to that, then there isn’t —any, “I should be attentive to this,” or “I should be doing this” Those things can be great creative constraints. Like, “My values and aspirations tell me I’d like to be doing such and such, but when I don’t go in that direction there’s something deeply valuable to learn from that.” Because in general, we tend to learn from where the attention moves, and what that reveals. [attention always moves in the present moment.]

Have you felt alone or connected or both during this period? Both alone and connected in some fundamental ways. Everything feels connected and interrelated for the most part. and I think there’s also definitely an element of fundamentally different or unique, specific channels that you are walking through or experiencing that others won’t automatically see. 

Are you comfortable with that kind of aloneness? I think it’s the nature of the universe. I don’t know that I find much reason to argue with or resist that. 

What is this period evoking in you? A kind of gentleness and fruition. A unique, gentle and kind energy. 

How do you experience your self in this time? The thing that keeps coming up is, there is this core attention–or consciousness, or however we want to name it–  from which we act and think and talk and “consciate,” and all of the other things. Generally it feels very solid– but it’s actually not. And in these types of moments you really see that.  I know for instance, that I will only catch pieces of what someone is talking about, but I will need to make my own story out of that– including with my own story.

That’s true – we always only hear a part of the story, even our own, and we construct from there. Yes and what I mean is something even more fundamental than that. We use up a certain kind of fundamental energy in just being the way we are.

The mind typically imposes continuity on experience, but in your case at this time that’s not happening in quite the same way. What does that feel like? You get to examine the actual experience when you don’t have the experience of that other type of continuity — and that can be both exhilarating and completely overwhelming, and depending on where you are on the spectrum you will try to adapt accordingly.

What does adapting to not having the solidity of continuity look like? The crux of it is developing some amount of — a set of qualities — including some amount of curiosity, some amount of fearlessness, some amount of assuming goodness and benign-ness. At the same time protecting yourself from where those conditions may not be met. 

What is it that needs protection?Maybe somewhat ultimately, but maybe somewhat confusingly — that need for protection is what needs protection. If we buy into a certain amount of. “I need protection for this,”– then that becomes a bit of a self-fulfilling prophecy. 

***

For the last few days I have been giving Viral a black pen and a blank sheet of paper in the morning. I ask him to let the pen move in whatever way feels most natural in the moment. Then I give him some brushes, an open paintbox and ask him to add color in whatever ways feel in flow. He tries, unsuccessfully each time, to get me to paint on his behalf. He does not think of himself as any kind of artist. But I’ve always been struck, even in his casual doodles, by the unselfconscious freedom and potency in his lines. And now in this twilight zone we find ourselves in, I’m interested in what might emerge through him in the wordless medium of form and color. And what words he might find afterwards to describe the emergence.

 Title: The World of Possibility, June 24th, 2024

What does this painting evoke for you Viral?

Logical creative possibilities that are seeded from a place of structure and generative force. And then the way it propagates…there  are things that support the propagation at both upper and lower ends. They make the expression an expression of possibility. And then there’s this watchmanship that’s underneath it all. Watchmanship is not the right word– it’s guardianship. The green one, and the brown one too, they are noble platforms. And these are eggs (streaming out) into the world of possibility. Then there’s the sky, ever potent, ever present, ever watching… 


Day 41-43: The Mystery Never Leaves You Alone

“It is strange to be here,” wrote John O’ Donohue, in the opening lines of his touchstone book, Anam Cara. “The mystery never leaves you alone.” It IS so strange to be here. And as for the mystery, it has us by the scruff of the neck. Are we carried between its jaws like prey by jungle cat, or like kittens by their mother? On some days its hard to tell the difference. But being here with Viral makes me curious about it either way.

One afternoon, last week, with the clarity that sometimes flashes forth even in the midst of his fever-dazes, he says to me, “You have limited places where you can take wild swings. But you have to take those swings while you can. You have to show up on the playing field.”

Wild swings. Is this whole period a series of them? Is that how he sees this stretch of the road? Talking to Viral in these past weeks has often had a certain dream-like quality to it. This is heightened by the fact that hospitals are not tethered to the earthly rhythms of night and day, and also by the fact that right now, Viral is not moored to time or place in the ordinary way. At times, when he speaks, it feels like his words comes to us from between two worlds. He has always had a unique form of eloquence. That eloquence now, is the same but also different. There is a fluency, originality and poetry to it– these things were there before, only now they seem much less mediated by the mind. He speaks with heightened thoughtfulness, and yet there’s far less thinking behind the words. He is using the rhythms of speech– but it often feels to me, like a form of singing.

When I am not caught up in the many demands of this period, when I’m not devoured by its unknowns, and my own heartache, I discover that there is a quiet voice whispering to me below the surface. And I know beyond my earthly knowings that all is well and all manner of things shall be well. And I find that I am deeply grateful for, and delighted even, by the dimensions that are blooming in this crevice of timeless time that we have fallen into. This beautiful being whom I’ve been married to for almost nineteen years has never been so simultaneously familiar and utterly mysterious to me.

Sometimes familiarity and mystery, play against each other like the facets of a diamond. Each catching the light and reflecting it in dazzling ways. Viral’s body language is intimate to my heart. The way he tucks his chin in and cocks one eyebrow quizzically when he has his reservations about something, the way he wrinkles his nose and smiles with his eyes in response to humor, the precise way he clears his throat before speaking, the meticulous way he cleans the lenses of his glasses, the prayerful way he folds his palms over his chest when sleeping on his back, the manner in which his gaze softens and shines when it catches mine, the way he— I could go on and on. I know by heart the way he does a thousand times a thousand times a thousand different things. But now, in this altered reality, these intimately familiar gestures, shades and nuances of being flash forth, poignantly alternating and sometimes merging with, intimations of something more enigmatic, nebulous and inscrutable.

He is at once both utterly the same, and incredibly new. In this time he has been at once both deeply tapped out — and profoundly tapped in.

***

During the most difficult stretch of my chemo (which even at its most challenging was exponentially easier than the road Viral has traveled,) I wanted nothing more than to just be within the experience as simply as a stick on the ground, or a stone at the bottom of a river bed. Empty of opinions about the present, or ideas about the future. Carrying only the honest weight of my being, and the weightlessness of a transparent mind. Nothing more and nothing less. Watching Viral live through the intensity of the past weeks it felt like I was watching him enter that space of a paradoxically alive inertness.

“Where do you disappear to in those intense times?” I ask him one day.

“I don’t go anywhere, ” he says quietly, ” I am right here.

“Does your mind go to the pain and discomfort?” Guri asks.

“It’s not quite like that,” he says, “It’s just — moment to moment.”

***

It amazes me. The cogency, clarity and insight that has surfaced throughout this time, despite the formidable degree debilitation. At the mundane level there are blank spaces in his mind, that will need to be filled back in, but there are also dazzling connections being made, even in the midst of the storm. Even his doctors are starting to see it. “What I’ve seen in you over these past weeks,” says one of them, “Is equanimity. I don’t come across that in people in your circumstances. And yesterday you said something that really stayed with me. You said you are ‘trying to attune to whatever is arising.’ I don’t have many patients who think like that.”

That kind of attunement, in the crucible of this time brings with it the flame of quiet revelations.

***

You have certain choices. Is this a period of determination versus I’m just here for what’s going to happen? First and foremost it’s a practice of just being true to your journey. What is it that we are empowered by? What is it that we are empowered by, even when we are being challenged by something, or being driven to do something different than what we wished to do in the moment before? That’s kind of what I get interested in– like, what is the true exploration?

 Do you trust life? I think you generally have to- but you also have to have a healthy ability to go either direction.My natural orientation is towards the unknown. What does it mean to be at the edge of discovery, the edge of aloneness? Things are always knowable to the next level of your understanding, and that edge is not something to shy away from. It’s something to attune to. That attunement is the basis for the confidence to go forward. How do you have your own experiments and learnings that you adopt as time goes on? And how do you make it so dynamic that it’s not about what you think it should be? It’s about what is moving your heart. You value the depth of the discoveries you’ve made up to now. Then those things start to be combined. New combinations and permutations happen, and at some point something new emerges. In this process we keep coming back to some form of experience. Maybe it’s something you need to iterate on for a while. Maybe there’s some evolutionary honing that’s happening in the moment. The process is dynamic and courageous…

Ultimately what I want is to be more of an expression of what is goodness.

***

From a conversation yesterday morning…

What is your spirit doing in this time? Attuning to the emerging nature of things. More specifically, [inquiring into] what is healing? What is the role of the individual, and the role of the collective? And what is the intersection between the two?There is something about living into that, as unknown as it might be. There is something to a playful dedication to this collective set of principles. It feels so satisfying when creativity is there, playfulness is there, and the emergent and collective nature is there. Then we start tapping into the source of things. I’ve also been playing with certain inquiries. How do you receive? How do you offer? How do you experiment and synergise intentionally?

Is opening yourself to receiving the same as opening to learning? Nice nuance there. I think receiving is a precursor to learning. If you’re opened yourself to receiving, you’ve opened yourself to learning and to acting. Your being is available to integrate yourself into whatever you’re inspired to do. 

How do you open to receiving? I think you actually have to gauge what your authentic relationship is with that which you are trying to open to. What is it that you are connecting to, and how resonant is it to open yourself up to that.You want to open yourself in a healthy way — not overly opening yourself up in an untimely or unskillful or unwise way. 

How can you tell whether it’s skillful or not? Ultimately I guess from your own experience but until then I think from your intuition. Asking 1. Is this worth learning from? 2. If yes, how so, why so, where so?

***

Watching him over these past weeks that were filled with such physical pain, at times Viral has seemed to have the face of a child. His eyes gazing at the world around him, with such heartbreaking innocence, trust and vulnerability. At other times he seemed positively ancient. His face in those moments, the face of a very old man– hollow cheeks, sunken eyes, shriveled mouth. How strange it felt to see past, present and future in a single beloved countenance. A reminder of how we carry it all within ourselves.

***

He is doing better now. What a blessing to be able to say that! There is still a ways to go, but the signs of improvement are many and meaningful. The last three days have been a turning point. He is regaining mobility, clarity and capacity more quickly than anticipated. Today he sat up, he walked, he ventured outside of his hospital room, he wore his regular clothes instead a hospital gown. He was able to remember the names of his nurses. He was able to interact with multiple groups of people, and able to enjoy a small celebratory dinner with Nipun, Guri and I. These are small things at one level, but right now they count as enormous.

What feeling-state do you find yourself in right now?” I ask him this evening. “I feel deep relaxation,” he says, “and tenderness and the sense of a very clear emergence, and an emerging stability. In an odd kind of way, this time has also been very humbling. Not conceptually but in a more lived way. Along with this there is a strong component of letting go, letting grow, letting flow. There isn’t a defeated sense of, “Oh no, I can’t do this!” Instead there’s an attuned clarity, joy, purpose, interest and heart movement. These things seem ultra important. Not just at the individual level but also the collective one. Why are we attuning together, and for how long? Maybe it’s for five minutes. And maybe it’s for 500 years.


Day 23-40: More and More Mystery

With a bone marrow transplant so much can happen in that treacherous window between the annihilation of the old immune system, and the phoenix-like rise of the new one.

And so much did.

***

The drugs make his limbs tremble. His fingers, darkened from chemo, shake violently as he attempts to bring a cup of water to his lips. He can no longer stand or walk on his own, and requires assistance for all the basic activities of life. For well over a week his body is wracked by relentless fevers that often raged above 104.The fevers clasp him tight, loosening their hold only very briefly, before laying claim to him again . His whole body is shivering, and we are told not to pile on blankets, but to place ice packs on him instead. We hate doing this, but there are no better options. He does not complain. Ever. His face takes on a quality of absorption, and it’s as if all his energies are settled within. His body is going through what it is going through. He is not pushing the experience away, he is not desperately seeking relief, he is not asking those around him for anything. There is a nobility to his silent endurance. It tears at my heart. When he sinks into the fiery ocean of a fitful sleep I wish I could reach him under the waves of pain, but that place is un-enterable. I hold his hand, stroke his forehead, listen to his breathing, to his quiet, occasional moans. I see the long and lovely length of him in his hospital bed. So much has been taken from him seemingly overnight at this stage of the journey. And yet his spirit is intact.

It has never been more luminous.

***

He has so little strength, such short periods of lucid wakefulness, and in those windows of time I see him directing what little energy he has, towards truly seeing people, and letting them know what he sees. “Thank you,” he says to C, who has stopped by to empty our trash bins, “Thank you for keeping us safe through the work that you do.” “You are both confident and gentle, he tells K, “That’s a rare combination.” To J, he says, “It seems like you’ve always followed your growth journey wherever it’s taken you. It takes courage to do that.”

Even now he tries in so many little ways to take care of me. It is second nature to him. Even when he is hands down, the one most in need of care.

***

Over these past couple of weeks Viral has endured acute physical pain, near-constant exhaustion, deeply debilitating bodily weakness, delirium, and the erosion of many of the landmarks that a working memory provides. Here in his hospital room, nights and days blur into one another, a stream of injections, pills, IV medications, vital sign readings, blood sugar tests, and more. He’s had two MRIs, two lumbar punctures, several CT scans, multiple x-rays, EKGs, EEGs, countless blood tests, and cyclonic visits from teams of experts from multiple specialties, who blow into the room with their considerable expertise, their repetitive inquiries, their varying degrees of sensitivity.

“What is your name?” Viral Mehta. “When is your birthday?” January 9th, 1979. “Where are you?” Stanford hospital. “Why are you here?” I had a bone marrow transplant.

Over and over again, day after day, the same questions, the same answers. Until one morning something changes. “What is your name?” Viral Mehta. “When is your birthday?” January 9th, 1979. “Where are you?” A nice room. “Why are you here?” To connect with good people.

“You are in the hospital because you are sick,” says one of the doctors (not one of my favorites). Viral responds in a perfectly polite and utterly unfazed voice, “We’ll see.”

On this journey that is now going on nine years, Viral has never deeply thought of himself as ill. “You’re healthy, and you just want to get healthier.” A gifted naturopath had said this to him years ago. It resonated with Viral’s own felt sense of his condition. It still does. Meanwhile, the ground has shifted under the rest of us as we consider the implications of a mind that no longer knows exactly where the body is.

But where is the mind? What is the body? And does anyone really know?

***

The signs have been there for awhile, but were confused with drug-fevers, and hospital-induced delirium. After flying in the dark for days, we learn in stages, that Viral is navigating two separate brain infections. One caused by a bacteria, and the other by a virus. This in addition to the fungal and bacterial infections already identified, and being treated, in his lungs and his blood. Meningitis. Encephalitis. Inflammation in the temporal lobes, impacting his memory. Words we’d never anticipated hearing on this journey. The doctors say he has an unusual combination of infections. We are in uncharted territory. They put him on an even more aggressive and complex regimen. There have always been all kinds of x factors on this path. Now there are exponentially more. But with time and with the right treatments they see a way forward to full recovery on all fronts. His fevers are dissipating, and as the inflammation slowly reduces he will get better, his memory will come back. With physical therapy his strength will return. He has multiple experts discussing all angles of his treatment, and we are seeing early signs of improvement. “We are cautiously optimistic,” says one of his doctors.

“He is a warrior,” says his nutritionist.” “I feel like when people go through something like what he’s going through, you get to see who they really are at their core, ” says the nursing assistants helping us today, “Whatever core qualities they have get amplified. And he is just so kind- even through all of this.” She turns to Viral, “All of us love getting to help take care of you because of who you are.”

***

Who are we without the reliability of our everyday memory? Shorn of it, we are stripped down to something more essential than the mask of personality. To come undone in this way would be disastrous for many of us, myself included. When there is nowhere left to hide, will the self open like a closet to reveal skeletons? Or like a shell, disclosing its pearl?

***

Viral’s short-term memory and some of his long term-memory have temporarily gone offline. He does not fully remember being admitted to Stanford, or having a bone marrow transplant. He does not remember the acuteness of his fevers or the tumult of all the tests he has been put through. He does not remember that I am being treated for cancer, and that he was a pivotal part of helping us plan for Nipun, Guri and I to be together during this period of our dual health journeys. Initially we tried to fill the gaps in his memory by telling him these things, over and over again. Eventually realizing that for the time being these details are not going to stick. His uniquely sharp and gifted mind cannot track and respond to things the way it has been accustomed to.

Yet in some fundamental ways he has never been more himself.

Unfailingly Kind. Appreciative. Selfless. Fearless and Tender.

I have never loved him more.

***
For a while, every time he was told he’d had a bone marrow transplant Viral’s first response was, “Whhatt?!” [in an endearingly familiar tone, not of dismay or horror, but of astonishment]. Second response, on learning more about all the different kinds of treatments and care he is receiving, “This is amazing!” And third response, “I’m so lucky.”

Amazement and luck are not the words that immediately come to mind when I consider our situation. I love that they are his.

It reminds me how amazing he is.

And how lucky I am.

***

Crack open my shell. Steal the pearl.

I’ll still be laughing.

It’s the rookies who laugh only when they win.

Rumi translation, by Haleh Gafori

Even through this time, his sense of humor is deadpan and delightful. It catches us unaware in many moments.

When his well-built physical therapist walks in, the tele-monitor starts beeping. “It knows the muscle quotient in this room just went up by a lot,” says Viral. “Who am I?” Nipun asks him during one of his night time vigils. “DJ Dave,” says Viral. “No, that’s not it.” “Javier.” “No. I’m your brother!” Viral laughs, “I know that Nipun. I was just joking.” 🙂

In the middle of severe debilitation he asks for his hand sanitizer. “You are the king of hygiene!” I tell him. “The king of hygiene and high jinks,” he says with a twinkle.

***

He has gotten very weak. Even rolling on his side requires help. Standing up yesterday, even with the assistance of two people, taxed him to the point where they suspected a possible seizure (which later thankfully turned out not to be the case.) The heavy drugs are helping with the infections but the process is slow, and everything costs the body. It takes a certain kind of strength to be as vulnerable as he is in this time, and not crumble. To be able to accept so many dimensions of support, and the change in his capacities, without consternation, frustration, bitterness or shame. His acceptance imbues a kind of dignity to the whole process. I am in awe of his ability to adjust so quickly and gracefully to these new circumstances — our new circumstances.

“You have an extraordinary degree of humility,” I tell him. “I’m not sure about that,” he says, “maybe I’m just very open to the fact that I have limited answers.” That just may be one of the best definitions of humility I’ve ever heard.

“This whole time you’ve never complained about anything- not even when you are in the most intense pain.”

“Everybody has got their pros and cons,” he says.

***

“We don’t rise to the level of our expectations. We fall to the level of our training.”

Viral often quoted these words by the ancient Greek poet, Archilochus. Now he is living them.

How to communicate to you his quiet steeliness, his utter sweetness, his selfless instinct to serve others even when he is not quite sure where he is or what is happening? I have lost count of the times he has asked me to follow a nurse or nursing assistant out of the room to see if she or he needs anything. I’ve lost track of how many times he has asked the person who is helping him, “What can I do to make things easier and more seamless for you?” When I am giving him food he wants to make sure everyone else has eaten. When one of the many machines in our room started beeping he said, “Pavi– can you check on that? I think someone is suffering.” When he is asked how he himself is doing, more often than not his answer is, “Fantastic.”

How to convey the brutal beauty that sears my heart every day and every night as I watch him navigate the unimaginable. He has no idea how spectacular he is. Every time I or anyone else tries to tell him, he turns the compliment right back our way.

A few days ago, in the midst of a moment where he was experiencing some confusion I asked him quietly– “What do you really want the focus of your life to be?” Without missing a beat, the love of my lifetimes responded:

“To be in the flow of my deepest evolutionary process.”

***

Guri and Nipun are special partners on this unscripted journey with all its twists and turns. They have put so much on pause for months on end to support us through this, whatever this is with such generosity and care. Viral registers their presence in his own way. “Remember the story of how Nipun used to watch over you with eagle-eyes when you were a baby?” I ask him, “He’s doing the same thing for you now.” “I know,” says Viral, “I mean I don’t really ‘know,’ but I have a kind of sixth sense about it.” A few days ago Guri asks how he is feeling, “Obviously I feel very grateful for each of you, and for having the support to continue little by little. You recognize how it’s all so tenuous, that you can be like, “Yeah I feel strong and I can do this or that,” but really it’s all very tenuous. If I didn’t have the support I wouldn’t be able to do it.” How is your body feeling?” She asks, “It doesn’t feel great. But it feels supported. And I think that goes a long way.” Guri’s quiet, steadfast, multi-dimensional support goes a very long way.

Our parents, siblings, extended families and community of friends near and far are potent contributors too. We are sustained by so much more than what we can see. The blessings, the prayers, the goodwill, generosity, and thoughtfulness that surrounds us is legion. Viral alludes often to all the offerings we are receiving in this time. “This whole thing brings so much togetherness,” he says, “It’s a good life.”

It is special to see how deeply he feels the togetherness of it all. I feel it too, and bow to it. Without it I don’t think I would be able to breathe through this time. I would have been crushed a long time ago.

But I would be lying if I said I don’t also feel the separation.

***

Nipun, Guri and I are staying for the next few months, in a beautiful home that we were lucky to find, just fifteen minutes away from Stanford Hospital. We had assumed when we arranged for it, that it would be the four of us living there. So far I’ve only been at the house on alternate nights. The rest of my time is at the hospital with Viral. It is hard to tear myself away from his side. The garden at this home is rather magical — but I feel oddly immune to its charms, and unexcited about entering it. I think of this Rumi translation by Coleman Barks…

Come to the orchard in spring.
There is light and wine and sweethearts
in the pomegranate flowers.
If you do not come, these do not matter.
If you do come, these do not matter.

***

Pavi: You know how in Sufi poetry the Beloved and the Divine are addressed as one? I feel like I can somewhat understand what that means because to me, you are the beloved and you are my experience of the divine.  Do you know what I mean?

Viral: I don’t know that I know exactly, but  if I sense into it, there is something you feel in yourself and there is something that you feel in me. Taken to its ideal level, what you feel is infinite love.

I place my head on his shoulder and his arms immediately cradle me as they so often have. I sink into the depths of this wordless, formless, endless love, that is my home. For those moments time disappears. Everything feels complete.

Everything is complete.

***

I’ve always loved Viral’s voice. Its warm timbre, its articulate confidence, clarity and depth. That voice is muffled now, soft, halting and slurred. The muscles in his face and jaw are tremulous. Speaking takes significant effort. Some words come slowly, others never arrive. And yet there is an otherworldly eloquence too.

“The fire of goodness is the same in everyone,” he said a few days ago, “We’re all just doing the best we can.” And this afternoon he looked over at me and said, “It’s all a remarkable adventure.”

Ultimately life is emerging in its own way. One never really knows what that means. Why do things emerge the way they do? How? When? And through whom? Through what partnerships and challenges? Ultimately it’s more and more mystery…But at another level one has to deal with a lot of the unknowns, and those can be painful and difficult things possibly. [How does one deal with that?] Through true conductivity and connectivity,” says Viral, “Everything else is a mystery.”